In Feb 2020, I went to New York for work. A month later, I could barely walk to the store across the street. Brain fog got progressively worse. It took me almost a year to start being able to walk minimally again and for the fog to clear. I still remember the day I woke up with mental clarity for the first time in 10 months. 3 years to fully walk long distances again with a rehab program.
It's #LongCovidAwarenessDay. I'm mostly functional now. A lot of people aren't. All the local long COVID specialist programs have had their funding dried up. I'm one of the lucky ones who got help, and got better enough to kinda sorta keep going.
What happens to the people who get long COVID now?
(This is a thread now.🧵)
It's #LongCovidAwarenessDay. I'm mostly functional now. A lot of people aren't. All the local long COVID specialist programs have had their funding dried up. I'm one of the lucky ones who got help, and got better enough to kinda sorta keep going.
What happens to the people who get long COVID now?
(This is a thread now.🧵)
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May Likes Toronto •
Inhaltswarnung: Dark thoughts about living and dying with a new disability
I literally looked into medically assisted suicide. For months. When I can't work anymore, and when I run out of funds, that would be an option. My friends have been living on disability and I didn't see a point in struggling to survive. Afterall, I'm pretty content with the work I've done and the impact I've left behind already.
I had a lot of support from my friends who've been through very similar disabilities and so I learned about pacing early. You kind of learn to live with it all eventually. The brainfog eventually lifted. I am terrified when it comes back for a visit. Is it here to stay? I don't know.
I read some studies that people who get paralyzed often feel this way for the first year, and then you find your groove and things are okay. BUT THAT'S WITH SUPPORT. Without support, you don't get rehab, or therapy. Without a diagnosis, you don't get supplementary income to help you survive this capitalist hellscape.
I was honestly about to give up until my family doctor accidentally got me into that long COVID care program. It was validation and care beyond Internet self-help. I can't stress how important this is.
🧵
Hugs4friends ♾🇺🇦 🇵🇸😷 hat dies geteilt
May Likes Toronto •
Inhaltswarnung: Poverty, Disability, and Assisted dying.
But this is why so much of my energy now has been on community and building empathy between humans.
The enemy is not disability. Disability comes for us all. We're all just temporarily abled. We lose our ability over time. Some sooner than others.
The enemy is poverty. When it's easier to get legal assisted dying than it is to get housing, food, diagnoses and treatments, assistive devices, support... we should call it by its real name: Eugenics.
What the hell is the point of living and working in society if we're not taking care of our people?
Where is our social contract?
🧵/end
slow learner, deep feeler •
Inhaltswarnung: Poverty, Disability, and Assisted dying.
I'm glad that you call it eugenics. There's only one reason we can't all have adequate support and that's a bunch of oligarchy bastards (imo). I believe ppl should have a choice, but not one that is forced because there are no supports available.
May Likes Toronto •
Maintaining the status quo of poverty is a choice. 1 in 5 Canadians suffering from food insecurity is a choice.
Hugs4friends ♾🇺🇦 🇵🇸😷 hat dies geteilt