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@actuallyautistic

It will soon be Autism awareness month, that wonderful time of the year when many autistics hit their foxholes screaming "incoming", or take to their bunkers and hide.

"But why?" I hear you ask. "Surely awareness is a good thing?"

Well, obviously yes, normally, but mostly, actually, no. Not in the way this normally pans out, anyway. Because this is the time of year when everything starts getting lit up blue and puzzle pieces start making their appearance and Autism Speaks articles rear their ugly, eugenic, heads. No matter how many times the vast bulk of the autism community explain that these symbols and the organisation that they are linked to, do not bloody speak for us and never sodding will.

Pity-me mothers parade their kids to showcase how terrible their lives are, or how there isn't enough help for their darling children. Which, whilst admittedly this is true for the kids, could be highlighted in better ways. Various celebrities and sports stars come out about the wonders of being diagnosed with autism and the huge change it has made in their pampered lives and puff pieces pop up everywhere about how someone succeeded because of their autistic superpower, or how they wouldn't be where they were now without it, or how someone's a hero, for standing up for their autistic friend. And editors across the land, slap themselves on their backs for such a wonderful job of awareness and here's to the next year and then silence once again falls.

OK, I may be slightly exaggerating this, but unfortunately not by as much as you might be thinking. So many times, even within the good articles and representation, there is the implicit message that only an official diagnosis can do this for you, which is a real kick in the teeth for everyone who has as much chance of getting one of those, as of winning the lottery. That this is something that is seen in us, rather than something that we can see ourselves. And all too often, even with the good stuff, it's always accompanied by the stock, what is autism? answers, from the internet. You know, the ones that just dryly quote the highlights of our disorder, in a way that none of us can actually recognise ourselves in and certainly don't help with others seeing us.

And this is the real problem with awareness month. It's all fine and dandy trying to increase awareness. But of what? Is it the problems and struggles, the difficulty of having autistic children, or being autistic in a world without support? The virtues of finally having your eyes opened to your autistic superpower? Of how the community and others could finally rally around you.

Or is it the different stories that finally allow others to see us, or even for us to finally see ourselves after decades in the dark. That allow the friend or neighbour, or workmate to maybe stop seeing you as the weird, or creepy, or even scary, person. But instead, someone who's just different, who sees and perhaps understands the world in a way that they don't. Not superpowered, or a burden, or broken in any way. Just yourself, just autistic. The stories that lead to acceptance and not just awareness.

#Autism
#ActuallyAutistic
@actuallyautistic
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Short answer, yes! 😈

https://autistics.life/@punishmenthurts/114159187689673047
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@actuallyautistic
Not sure how many know this, or how acknowledged it is, but found this looking up about it:

"Did you know that Autism Acceptance Month was originally called Autism Awareness Month? Over time, the focus of the month isn’t just about making people “aware” of autism, but more on the acceptance of autism.

The month kicks off with World Autism Awareness Day, which was originally founded by Dr. Bernard Rimland in 1970 after his own son was diagnosed with autism. The first Autism Awareness Month was held in April 2007 with the goal of educating people on autism and raising awareness of its existence.

Since then, the movement has occurred yearly, with a new goal—to tell the stories of autistic people. Autism Awareness Month now aims to cultivate understanding and acceptance of autism, which includes the wants, needs, struggles, and triumphs of autistic people."

From: https://transitionabilities.com/world-autism-acceptance-month-2025/
May I ask a slightly related question? The AAC image bank I use at work has an image with puzzle piece for "autistic" and I hate it. Is there any graphic symbol for autism accepted by autistic community?
The gold infinity symbol was adopted by the #ActuallyAutistic . There are many different ones, but they convey the Spectrum best.
@pathfinder
Gold *infinity symbol
when I first bought fimo, the first thing I tried to make was an infinity badge. It was a thing from the Aspies for Freedom forum. Someone suggested it as a way to recognise fellow members, so I made one. It got a little burnt when I had to bake it.

No one else made one 😅

It fell off the clip in Asda, and I got distressed and had to go back into the store and retrace all my steps until I found it. I still have it, I'll see it I can dig it up.

Speaking of AFF, does anyone remember the Neurotypicalism Speaks parody a teenage member of the forum made? They were 14 iirc. Everyone there enjoyed it, and then #autismspeaks threatened the kid with legal action. They threatened to sue a 14 year old autistic child over a parody site.

I saw it and it was funny and harmless. I'm going to see if an archive version is avaliable anywhere.

That's the kind of group they are. It always makes me rage when I see books with endorsements or even intros from that nasty group. Why would anyone from the autistic community want anything to do with them?

#fckautismspeaks #BoycottAutismSpeaks
Article about it: https://archive.ph/0toCT

Unfortunately I can't find a snapshot of it. There's this:
http://web.archive.org/web/20080131122849/http://www.ntspeaks.com/

But that's not the original parody. I did find a similar site, but it almost endorses that nasty hate group, so I'm not going to link it, even though it's kinda funny.

If anyone has a screenshot, please post it. I wonder how that (then) kid is doing now.
I just clicked on the link inside about autism speaks controversy and it's all about how they are a charity. It almost reads like a parody of itself. @anxiousspotato @pathfinder
yeah that's the one I saw, but they endorse the eugenics site, that's why I didn't link to them.

That's not the original site by the AFF member. They'd never have recommended donating to them.
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Then I heard the image was a sad puzzle piece, I thought that's so sad. So I drew my own puzzle piece in my favourite colour. It happily explores space with stars and a moon in a ufo... 👽

I do like the infinity symbol in many colours a lot, but I haven't come up with a nice image yet. Maybe I can plan to do that in april?
Also, what do you think about making april here in the fediverse like we want out autism what-ever- month to look like? We could post more about our hobbies? What hints and observations or good news? 🤔 Or would it trigger you too much because it'd be in April?
A very happy puzzle piece surrounded by friendly stars and moon, in an ufo with colourful lights.
Can I just ask how you even were able to type that much text into a single post? :O
Different instances have different character limits.
Darn. That's cool though.

By the way, yes Autism Speaks sucks. As does their hero William Shatner who has attacked autistic people who dared try to inform him they suck (he even hates anyone who uses #actuallyautistic). And their awful 100 Day Kit for Parents (advertised on Sesame Street and such) which encourages parents to grieve for loss of the "non-austistic child" they thought they had. And compare autism to leukaemia... Bleh.
Indeed. They might as well revert back to calling us changelings and using magic to try and deal with us.
Minds carved from ignorance and fear.
grieving your child?! Wtf?! I got mine this @niamhgarvey book, and wrote “welcome to the club!” inside (I highly recommend it for kids)
https://www.google.nl/books/edition/Being_Autistic_And_What_That_Actually_Me/iCTZEAAAQBAJ?hl=en
"encourages parents to grieve for loss of the "non-austistic child" they thought they had. "

Jesus fuckin Christ.

Not every day is a picnic but if anyone suggested I do that about my kid I'd fucking deck them.
I'm reminded of this book "I Wish My Kids Had Cancer: A Family Surviving the Autism Epidemic" by some dickwad Michael Alan in 2008. I wonder what his kids think about that today.

https://www.goodreads.com/book/show/6330164-i-wish-my-kids-had-cancer#CommunityReviews
Oh My Dawg! That is horrendous! Also, understandable in a hideous way. Cancer garners sympathy. Autism, at any time, in certain spheres, garners the opposite. A two-headed calf would be more popular. We're not all that far from mobs with pitchforks and burning branches.
I hope he learned that he had entirely the wrong attitude, or that his children escaped him and his community. @davey_cakes @pathfinder
I can't understand it. I just find it hugely offensive to both autistic people and anyone who's suffering from cancer or has lost loved ones to cancer. To even compare the two is just inexcusable. And yet Autism Speaks still does this.
In their "100 Day Kit for Parents" it's apparently ok to be angry at a child with leukemia getting attention and sympathy when your child has been diagnosed as autistic...
Your child ain't dying... To want a bit of support is fine, but this is nuts.
“I felt angry when a child at my son's school was diagnosed with Leukemia around the time our son was diagnosed with autism. Everyone sent cards and cooked dinners for them. They didn't know I needed that kind of help too. When I let people know I needed help they came through for me.”
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It is all screwed around. Plus, this just drives autistics further out into the wilderness.
Hopefully they've disowned him.
I think the first I ever heard of Autism Speaks was in a Chris Packham doc about autism and he immediately recognised their approach as a bit fucked up. All about making kids mask up and act as "normal" as possible.

Kept hearing bad things since too but fuckin hell, the bad things keep coming.
It's why many in the community consider them a hate group.
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Autism Speaks likes to claim they're a lot better now than when they made this 2009 video (which William Shatner at first claimed was a fake). But all I've seen is evidence (like that 100 Day Kit) that they haven't really progressed much at all.

https://www.youtube.com/watch?v=9UgLnWJFGHQ
That sounds like a horrible choice of words. Grief and mourning for a life you thought you’d have is an ordinary reaction, and a key part of accepting what your life actually is, but framing it as grieving the loss of a theoretical child is just awful.

It seems to me that “autism awareness” has the same issues as most “awareness” campaigns — “adversity porn” that turns people into spectacles and stereotypes. The road to hell is paved with good intentions, as usual. 🙄