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It’s high time we start being honest about what’s behind a lot of the push towards “wellness”.

It’s ableism and eugenics. Its scared people who can’t face the fact that they could lose their health at any moment.

It’s people who desperately need to cling to control.

First of all I’m not at all opposed to a healthy lifestyle.

I was an avid hiker and yogi who followed a whole foods diet, did regular meditation and followed a lot of wellness influencers.

I still became chronically ill.

When the “wellness” activities didn’t cure me, that community abandoned me.

They looked at me as a failure. They believed I wasn’t “wellness-ing hard enough”.

If it were them, they would be getting better.

The root cause of this is ableism. Disability terrifies people.

The idea that there are conditions which won’t necessarily kill you but will rob you of your quality of life? Its scary.

Knowing there’s no treatments or cure? Terrifying.

But it’s not fair to blame the ones who are suffering. To scrutinize their past behaviour for signs that they brought it on themselves.

To hammer them with unsolicited advice and “tips” for things they could do if they really wanted to get better.

No one asks to be chronically ill. It just happens.

And everyone is one virus, infection, accident or stroke of bad luck away from it happening to them.

The odds that they will be the “exception” are incredibly low.

Let’s not forget that “wellness” costs money. A healthy lifestyle doesn’t come cheap

Disability is expensive. Nothing can prepare you for how devastating it is to spend every cent trying to stay ahead of your dwindling health, only to be told you’re not doing enough

Most of us can’t afford the lifestyle that wellness folks peddle. It’s big business. They’re not helping for altruistic reasons, they’re lining their pockets.

They don’t even care if their recommendations are harmful (and they definitely don’t care if they aren’t helpful)

Please, don’t blame someone for their disabilities. Don’t comb through their past looking for points of “weakness” that can absolve you of facing your own fear of chronic illness

No one is perfect. We’ve all done things that aren’t “healthy”. No one deserves chronic illness

If someone in your life is blaming you, know that you can set firm boundaries to protect yourself.

You don’t have to put up with that kind of gaslighting behaviour

I know it hurts, I’ve been there many many times. But you have the right to walk away

Remind yourself it’s not about you. It’s their fear of the unknown. Their fear of disability. Their own internalized ableism.

One day when they lose their health they will be forced to confront their false beliefs, and there will be a reckoning.
Until that day comes the best we can do is protect ourselves from the toxicity of people who can’t face the reality of our conditions.

We can fight for one another. We can support one another. We can be loud, visible and unashamed.

#disability #chronicillness #longcovid #mecfs #spoonie #ableism #wellness #Maha #eugenics #fascism #disabilityrights
Thanks for sharing this!
Two thoughts:

- A new definition of health: "Health is the ability to adapt to a changing environment." Please don't ask where I heard it first. But it creates a very different perspective...

- The "health"-lifestyle you describe seems like a "health"-labeled consumerism. I.e. as long as your society is the way it is, it will remain. I.e. in capitalism even "health" is sick.
Precisely why I started FIAR. I lived with Hep C, surprised I didn't get HIV, had Long COVID. Some things help a little, others a lot, some cure (e.g., HCV is curable). Re "dietary supplements" One must know what they do, ways to assess that. If we'd had more clinical studies, where they "work" to mitigate or slow disease, improve symptoms, they should be covered. But we don't have health care in the US. Crap polemics. Profiteering kills.

https://fiar.us
Oh do I hear what you're saying about people giving bad advice. I had very elevated resistant blood pressure for years, and people would just NOT STOP recommending that I try the strangest "cures" -- like eating potatoes every day? and doing yoga, which I actually was not supposed to do because of the blood pressure? and giving up all Asian food, which I told the doctor I'd rather be dead? And guess what, it turned out I had a TUMOR and all that stuff was either useless or it actually made my situation worse.
“I still became chronically ill.”

This should be shouted from the rooftops.
The wellness industry is pretending we have influence over the future. We don’t.

An underaged, drunk driver in a stolen car altered my future when I was 17. I have lived with discrimination labelled wellness and beauty.

I am thankful for #science.
as an #ActuallyAutistic person who might be #AuDHD I totally relate.... especially regarding RFK.
thank you for posting this and saying it so well and so thoroughly. My wife has been disabled for almost ten years and it was a shock to us both that she couldn't just "get better".
We've definitely adjusted our outlooks since then and accept the reality of living in maintenance mode.
When you live in a world (and a country) that defines your worth according to your job or your wealth, it's easy to internalize that and start to get bitter.
That's what therapists are for.
this is the whole drive behind forceing disabled people to show their disability over and over again to be eligible for wellfare or social security support. as if the able bodied people's hatred of what they fear can be lessened by constant testing of those whom they see as lesser than themselves.
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A Disability Support Assessor actually asked how long an amputee's condition was likely to last. Same was asked of an Grand Mal epileptic, and a Trisomy18 person. This was an agency that the UK government brought in to go through 'all' cases of disability...looking for fraudulent claims. Needless to say, they found maybe 1 in 15,000. An expensive exercise in cruelty, overseen by a reincarnation of Caligula.
Conservative politicians, and those who vote for them, live in fear of the sight of disability. Craven, vindictive cowards. @broadwaybabyto
oh yes, I'm from the UK, I have gone through these tests. question to someone with downs sindrome, "when did you catch it?" here's an article. cw, mention of suicide https://www.accessable.co.uk/articles/9-shocking-errors-made-in-assessments-for-pip-and-esa-by-capita-atos-and-maximus
@Tooden Yep, 20 years to get correct diagnosis, and a lot of $$ down the drain trying “cures.” Even with a diagnosis, people want to tell you what will fix it. It’s like witchcraft - do this and magically, you’ll be well.
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