@auscovid19

#Covid #LongCovid #CovidIsNotOver
Reposting link for broader exposure, I hope you don't mind. Significant article. Regrettable 'prove you're human' gatekeeping, but worth surmounting the harassment.

"‘Something was wrong with my brain’: How covid leaves its mark on cognition"
https://archive.md/j28FD

Long Covid will cost the economy trillions of dollars. The economic devastation of a mass disabling event can not be overstated.

Yet more funding has been cut, including to a project that was nearing completion.

The reason? Its a “waste of time”

The only reason to believe this is because you don’t care about Covid, you certainly don’t care about Long Covid and you’re preparing to leave the chronically ill behind.

https://cen.acs.org/policy/research-funding/NIH-cancels-RECOVER-grants-long/103/web/2025/03

#longcovid #chronicillness #uspoli #disability #covidisnotover #covidisairborne

@auscovid19 Speaking from personal experience, the mental health case burden in college health at our local university has significantly worsened compared to 10-15 yrs ago, and it keeps getting worse every year since the beginning of the pandemic.

#LongCovid #CovidIsNotOver #COVID #COVID19

#Krankenstand & #LongCovid oder?
Wundert ja keinen das die kleinen nix lernen wenn sie inkl. der Lehrer ständig krank sind.

Press release for a new UK study:

"Nearly one in ten unsure if they have Long Covid. Almost 5% have the condition and socially disadvantaged groups are most affected"
https://www.eurekalert.org/news-releases/1076866

Free paper:
https://onlinelibrary.wiley.com/doi/10.1111/hex.70202

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

Hey #RFKJr, you say you want to study #ChronicIllness. Well, I have one! It was caused by #COVID19, and now you want to close the office that studies #LongCovid? Forgive the technical terminology, Mr. Secretary, but rot in hell. https://fed.brid.gy/r/https://bsky.app/profile/did:plc:flwgfsh2mhpoqwjwwt2mesjv/post/3ll6ah6wczk2s

Recording with:

- Dr David Joffe: an overview of biological basis of Long COVID

- Dr David Tuller: on basis of psycho-behavioural therapy focusing on the PACE trial & a major #LongCOVID trial"

https://youtu.be/V9f_kjlz6Ho

From latest Science for ME update

@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Press release:
Long COVID could be costing U.S. $2.0-$6.5 billion annually

https://www.eurekalert.org/news-releases/1077514

Paper (not open access):
https://academic.oup.com/jid/advance-article-abstract/doi/10.1093/infdis/jiaf030/7972782

Comment: I think I have seen higher estimates. Still huge numbers

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

4/
“We focus on common phrases that clinicians often tell patients, but which can be nonproductive, inappropriate, and frankly, damaging to the physician-patient relationship.”

#MEcfs #LongCovid
@mecfs @longcovid

3/

“Who is the target audience for the paper?

Physicians of all specialties and other healthcare practitioners, such as psychologists, physical therapists, social workers, nutritionists, and others.”

#MedEd #Mastodon #mecfs #longcovid
@mecfs @longcovid @dysautonomia

2/

“For people with complex chronic diseases such as long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and dysautonomia, a clinician’s inadvertently hurtful language can compound suffering and derail effective communication.”

#Dysautonomia #PwME #mecfs #longcovid
@mecfs @longcovid @dysautonomia

🇬🇧 UK: Amber Richards from Brighton caught COVID-19 in March 2020 and was diagnosed with long Covid in November 2021. Once active, enjoying walks, festivals, and clubbing, she now struggles with extreme fatigue, sleeping 14 to 18 hours daily.

#LongCOVID

Source: https://archive.md/7Fos8

The good news is SARS-CoV-2 and Long COVID research are advancing fast.

Luckily people are generously devoting time to roundups like these:

https://longcovidweekly.substack.com/p/long-covid-weekly-132-a-new-name

https://covidbc.webfoot.com/2025/03/15/2025-03-15-general/

#AirborneAware #CovidCompetent #SARSCoV2 #CovidIsNotOver #COVID #COVID19 #publicHealth #pandemic #LongCOVID

You know what might actually help some of us work? A council-run trades service.

I need a weekly cleaner who will actually turn up. I need a plasterer without the ringing round trying to get quotes. I need a decorator without the searching and trying to get recommendations. I need someone I can call to change lightbulbs I can't safely reach and hook the curtain back on its rings.

I'd happily pay the going rate for the work if it got rid of the headaches.

#Disability #LongCovid #BenefitCuts

Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative

https://www.jmir.org/2025/1/e59217/

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots

Wenn Bundespräsident #Steinmeier über die nötige “Aufarbeitung” der #Corona-#Pandemie spricht, klingt das so, als wollte er noch den letzten Querdenker besänftigen. Wann und wie wird eigentlich wieder der #Covid-Toten gedacht (letzte Gedenkfeier war bei 80.000 Toten 2021, jetzt sind es mehr als doppelt so viele), wie werden deren Angehörige, Menschen mit #LongCovid “abgeholt”? Wie wird gewürdigt, dass Zehntausende Menschen nur wegen Pflegekräften, Hygienemaßnahmen, Impfungen noch am Leben sind?

Oh, I'm on the front page of Rolling Stone right now, kinda. Guess I picked a bad moment to look at my phone. Don't be me. Don't look at your phone lol.

Photo is from #MEAction protest at White House, Sept. 2022, right after Biden said the pandemic was over.

Thanks @justyourluck for posting this.

#LongCovid #MEcfs #journalism

https://www.rollingstone.com/culture/culture-features/long-covid-five-years-1235296375/

As far as I know, I've only had COVID once. It was a "mild" case. It didn't feel any worse than a cold and a bit of a sore throat for me. And even though I was fully vaccinated, took Paxlovid right away, and rested very very hard for three months (going to bed whenever I felt even the slightest bit tired), I still ended up with long COVID. I was strong and healthy before. I trained five days a week at the gym and yoga studio and hiked on weekends.

I'm scared shitless about getting COVID again. I'm one of the very few people I know who still masks regularly. #LongCovidAwarenessDay #LongCovid #Covid #MaskUp

I was an athlete for years. I did fitness competitions, trail running, mountain running, obstacle course races, interprovincial bicycling, hiking, and martial arts. I was a professional dancer, an aerialist, a model, and a LARPer. These days, I spend the vast majority of my time sitting down. I go to the gym a couple of times a week and try to go for walks every day, but if I exert too much or think too hard for too long, I'm exhausted.

This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. #LongCovidAwarenessDay #LongCovid #PostExertionalMalaise #ChronicIllness

Because of long COVID, my dad will never walk on the beach again. He can no longer play accordion or guitar because of long COVID.

Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. #LongCovidAwarenessDay #LongCovid #ChronicIllness

Well done #RollingStone well done

👏👏👏👏👏👏👏

FRONT PAGE addresses #LongCovid and #ME

It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid.

We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures.

Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection.

This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid.

It’s time we start processing the trauma of the pandemic and stop living in denial.

We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.

Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place.

Wear a mask. Stay home when sick. Clean and ventilate the air.

When we all agree to care about the air we share, we can begin to bring about real change.

https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid

#longcovid #longcovidawarenessday #covidisairborne #covidisnotover #sarscov2 #chronicillness #wearamask

From Cyprus:

Long-COVID from the perspective of neurologists at the outpatient clinic: A cross-sectional field study

https://www.tandfonline.com/doi/full/10.1080/01616412.2025.2472824

From the latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

From Iraq:

Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs

“Ultimately, you are on your own.” A qualitative analysis of barriers to health care from the perspective of patients with long COVID

In German with English abstract:
https://www.zefq-journal.com/article/S1865-9217(25)00046-7/fulltext

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs_de

I wrote a guest article for Healthy Debate that looks at why we need mandatory masks in healthcare, why surgical masks aren’t enough, and how the mounting threats to public health are putting lives at risk.

If you’re a healthcare worker, mask up.

Show us you take your oath to “do no harm” seriously

https://healthydebate.ca/2025/03/topic/wear-mask-plea-health-care-workers/

#covidisairborne #covidisnotover #longcovid #pandemic #publichealth #wearamask #n95 #measles #h5n1 #keepmasksinhealthcare #chronicillness #disability

Research Digest 114

https://www.emerge.org.au/researchdigest/research-digest-issue-114/

Includes new "Easy Read Overview" plus the option to hear the text

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

(US) Telehealth Update

Image from Massachusetts ME/CFS & FM Association March 2025 e-newsletter:
https://massmecfs.org/newsletters/919-2025-03-march-newsletter

@chronicillness
@spoonies
@disability
#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
@longcovid #LongCovid #MEcfs
@mecfs

From Germany:

Clinical, histopathological, and radiological characterization of post-acute sequelae of COVID-19

https://oparu.uni-ulm.de/items/fc17b8f9-dfd3-456d-896e-bcfeafd10d4f

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

🇺🇸USA: I'm a doctor studying devastating effects of long Covid. Now it's ruining my life too.

"When Dr Allison Cohen began studying a new and mysterious illness in 2021, she never thought it would come after her."

"But 3 years later, long Covid has upended her life so much that even a run or long drives make her ill."

"Dr Cohen and up to 17 million Americans with the condition, every task—showering, chores, work, socializing—drains energy."

#LongCOVID @auscovid19

Source: https://archive.md/DGqnk

Five years ago today, the WHO declared COVID-19 a pandemic. Since then, much of the world has moved on—but COVID hasn’t disappeared.

People are still getting sick, hospitals still see surges, and Long COVID continues to disrupt lives. The good news? We still have the power to protect ourselves and our communities.

Read our latest blog on why prevention still matters: https://whn.global/five-years-since-covid-was-declared-a-pandemic/

#COVID19 #LongCOVID #PublicHealth #MaskUp #CleanAir

Here's the latest News in Brief (March 3 - 9), a weekly summary of ME/CFS and Long Covid news from the Science for ME forum:

https://www.s4me.info/threads/news-in-brief-march-2025.43011/#post-592734

@mecfs @longcovid

#MEcfs #LongCovid #ChronicIllness #MyalgicEncephalomyelitis #Science4ME

"Even if certain types of immune damage following COVID did turn out to be transient, which is another line of argument taken up by minimizers, how would we know in a world plagued by never-ending reinfections? If damage lasts 7 or 8 months, and a child is reinfected with the KP.2 variant in the summer and the XEC variant in the winter, when is that child ever healthy? This type of debate becomes academic in a world without mitigations; the body would barely have time to recover from one infection before the next would be on deck."

#Covid #CovidIsNotOver #LongCOVID #LongCovidKids #WearAMask

https://www.thegauntlet.news/p/kids-keep-getting-sicker-as-evidence

Pandemics change people. We aren’t used to dealing with the mass death, disability & uncertainty that comes with them.

Unfortunately due to technology & misinformation, society is choosing NOT to process its collective trauma.

Most people are firmly in denial about COVID, and many are grasping on to conspiracy theories and harmful rhetoric in order to return to their 2019 version of “normal”.

That denial is changing us. Refusing to deal with trauma has consequences.

We’re becoming more detached, reckless and apathetic.

There’s still time to change. It starts with acknowledging that the threat has not passed and we all need to do our part to protect our health & the health of those around us.

We have to begin to adapt so that we can heal.

#pandemic #publichealth #trauma #chronicillness #longcovid #COVIDisAirborne #covidisnotover

On March 15, join people across Canada and beyond to honour #LongCovid Awareness Day 🩵🩶 In BC, @cancovsoc will lead an event at the Vancouver Art Gallery grounds (750 Hornby St. Vancouver) from 10:30 am to 12:00 pm.

Access info: wear a respirator. (Some will be available on site, courtesy of Clean Air 604.) The area is accessible to mobility aid users. Speakers will have microphones. Learn more about all the events: https://covidsociety.ca/priorities/long-covid/

If we were to see immune damage manifesting at a population level, it would look like what we’re seeing today: big waves of common illnesses. Unusual spikes of uncommon illnesses. Course reversal for previously declining and eliminated illnesses. An unexplained, global wave of sickness.

How much more denial can the bodies of our children take? Are we going to force them to find out?

lots of citations demonstrating that damage and more at https://www.thegauntlet.news/p/kids-keep-getting-sicker-as-evidence

#AirborneAware #CovidCompetent #LongCOVID #CovidIsNotOver #COVID19 #SARSCoV2 #immunity

🧵
Unusual but sympathetic paper:

Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders

https://www.mdpi.com/1660-4601/22/2/275

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

1/

⬆️ ⬆️ ⬆️ COVID is not over.

#COVID #LongCovid #CovidIsAirborne #CovidIsNotOver #Vaccination

Highlights of @ducky 's COVID-19 roundup https://covidbc.webfoot.com/2025/03/07/2025-03-07-general/ this week:

(2024-06-16)

ten people out of 27 had significant improvements after a stellate ganglion block: [...]

The other fifteen partially responded, and got another treatment — which meant that their data couldn’t honestly be used in this comparison [...]

The two who did not respond at all to treatment were two of the three people who only had smell/taste issues
https://www.autonomicneuroscience.com/article/S1566-0702(24)00049-3/fulltext

(2025-03-03)

air pollution and genetics both raise the risk of severe COVID-19 outcomes.

For each interquartile range–rise in air-pollution concentrations, the risks of COVID-19 infection were 96% higher for PM2.5 and PM10, 97% for NO2, and 98% for NOx.
https://www.pnas.org/doi/10.1073/pnas.2421513122

(2025-02-28)

Asthmatics who got Paxlovid for COVID-19 infections were 35% less likely to be hospitalized than ones who got molnupiravir
https://respiratory-research.biomedcentral.com/articles/10.1186/s12931-025-03156-2

#CovidIsNotOver #SARSCoV2 #COVID19 #COVID #LC #LongCOVID

Prior to Covid it was normal to mask in the NICU. People understood that premature babies are as vulnerable as they come and need to protected.

Now? Gowns & gloves but no masking.

The damage caused by anti mask rhetoric will be felt for years (possibly decades) to come.

Mask mandates belong in healthcare. We should be providing free respirators at the door & cleaning and ventilating the air.

If you’re a healthcare worker who doesn’t think you need to mask, please read my plea on behalf of vulnerable patients:

https://www.disabledginger.com/p/a-plea-to-maskless-healthcare-workers

We know masks in healthcare stop the spread of airborne disease. We know they reduce the risk of hospital acquired COVID (which has a 10% mortality rate).

We know respirators work even better.

So why aren’t we masking? Why are patients having to bear the brunt of infection control?

https://www.disabledginger.com/p/we-need-mandatory-masking-in-healthcare

#covidisairborne #covidisnotover #longcovid #chronicillness #ableism #eugenics #keepmasksinhealthcare #disability