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Beiträge, die mit LongCOVID getaggt sind
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Thanks very much to David for his kind words on me in this. I have largely retired from writing papers, letters & e-letters and am very grateful to him for his ongoing work which takes a lot of ongoing commitment, plus dealing with many frustrating scenarios.
https://virology.ws/2024/11/13/trial-by-error-my-tour-of-ireland-through-wind-and-rain-slides-of-my-talk/
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC
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Thanks very much to David for his kind words on me in this. I have largely retired from writing papers, letters & e-letters and am very grateful to him for his ongoing work which takes a lot of ongoing commitment, plus dealing with many frustrating scenarios.
https://virology.ws/2024/11/13/trial-by-error-my-tour-of-ireland-through-wind-and-rain-slides-of-my-talk/
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC
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Trial By Error: My Tour of Ireland, Through Wind and Rain; Slides of My Talk | Virology Blog
By David Tuller, DrPH Last month, I took a quick speaking tour around Ireland at the invitation of the Irish ME/CFS Association. I first became acquainted w ...David Tuller (Virology Blog)
New: the week's #Covid news and new resources in one easy, free digest. US faces "quindemic," babies under 6 have highest hospitalizations, David Tennant's Macbeth cancellations, new black masks, and more.
Link: https://www.patreon.com/posts/pandemic-roundup-115966923
#publichealth #LongCovid #journalism #prevention
Link: https://www.patreon.com/posts/pandemic-roundup-115966923
#publichealth #LongCovid #journalism #prevention
A new Tour de force review of #LongCovid by Antar & Cox in Science.
The authors discuss poss mechanisms of Long Covid including viral persistence, autoimmunity, endothelial activation, microbiota dysfunction, etc & review some trials that are underway.
https://tinyurl.com/2p8jnrrz #press
The authors discuss poss mechanisms of Long Covid including viral persistence, autoimmunity, endothelial activation, microbiota dysfunction, etc & review some trials that are underway.
https://tinyurl.com/2p8jnrrz #press
“If you’ve been fighting for Covid mitigations for the last five years - you more than likely saw this coming. It was painfully obvious when the great unmasking occurred that many people on BOTH sides of the aisle didn’t care about the “vulnerable”. Didn’t care about community or protecting their neighbours. Didn’t care about anything other than their own ability to go to brunch, travel, socialize and get ‘back to normal.’
I’m not saying people should have shuttered inside their homes forever. None of us are. But they should have kept masking. There was no reason to stop. Respirators are highly effective at stopping the spread of Covid. The vast majority of people CAN wear them. We have mask blocs all over the world to provide masks to people who can’t afford them. It’s a simple thing you can do to protect yourself and - perhaps more importantly - protect others.”
If you missed my latest - it’s about the U.S. election, disability rights, eugenics, fascism and how we got to where we are. Perhaps more importantly - it’s about what comes next.
https://www.disabledginger.com/p/how-did-we-get-here-and-what-comes
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans #fascism #election2024
I’m not saying people should have shuttered inside their homes forever. None of us are. But they should have kept masking. There was no reason to stop. Respirators are highly effective at stopping the spread of Covid. The vast majority of people CAN wear them. We have mask blocs all over the world to provide masks to people who can’t afford them. It’s a simple thing you can do to protect yourself and - perhaps more importantly - protect others.”
If you missed my latest - it’s about the U.S. election, disability rights, eugenics, fascism and how we got to where we are. Perhaps more importantly - it’s about what comes next.
https://www.disabledginger.com/p/how-did-we-get-here-and-what-comes
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans #fascism #election2024
How Did We Get Here and What Comes Next?
Disabled people have been warning others for nearly 5 years that eugenicist Covid policies would lead to a rise of fascist, racist, bigoted, misogynistic hatred. It's here now. So what’s next?Broadwaybabyto (The Disabled Ginger)
#IDMastodon #molecular_biology #MolecularMedicine #Publichealth #LongCovid & Mitochonrial Dysfunction.This study distinct mitochondrial structural abnormalities in LC patients,notably incl significant swelling, disrupted cristae, & an overall irregular morphology, which collectively indicates severe mitochondrial distress.
People spend their lives running from suffering. Doing whatever they can to avoid feeling pain. The idea of “forever suffering” is terrifying to them. I think this fear is behind a lot of the disdain we see directed at disabled people.
We remind others that suffering can be permanent. That it can’t always be outrun.
We exist in the grey. Our illnesses won’t kill us - but they also won’t ever get better. There’s no cure on the horizon. No “are you better yet?”
This reality scares the crap out of people.
As such - they pull away from us. They abandon us or treat us with such disdain that we walk away from them. The ones that stay often expect us to hide how sick we are. To plaster a smile on our face and say we’re “fine” so that they don’t have to feel uncomfortable.
When they ask how we’re feeling or if we’re “any better”… they don’t want to hear the truth. In fact - if you tell them the truth you could find yourself facing a lecture on “positive thinking” or how you just need to “try harder” and you will suddenly overcome your illnesses.
People are unable or unwilling to face the realities of chronic illness - so they make it harder for us to face it as well. They treat it like it’s our fault. Like we did something to become ill or like we could get better if we “really wanted to”.
They will push our boundaries, gaslight us and yes - put us at risk for covid. So this is your reminder that it is ok to set and hold boundaries. It’s ok to protect yourself. If someone won’t be there at your worst - they don’t deserve you.
https://www.disabledginger.com/p/we-dont-do-sick-if-you-cant-hide
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans
We remind others that suffering can be permanent. That it can’t always be outrun.
We exist in the grey. Our illnesses won’t kill us - but they also won’t ever get better. There’s no cure on the horizon. No “are you better yet?”
This reality scares the crap out of people.
As such - they pull away from us. They abandon us or treat us with such disdain that we walk away from them. The ones that stay often expect us to hide how sick we are. To plaster a smile on our face and say we’re “fine” so that they don’t have to feel uncomfortable.
When they ask how we’re feeling or if we’re “any better”… they don’t want to hear the truth. In fact - if you tell them the truth you could find yourself facing a lecture on “positive thinking” or how you just need to “try harder” and you will suddenly overcome your illnesses.
People are unable or unwilling to face the realities of chronic illness - so they make it harder for us to face it as well. They treat it like it’s our fault. Like we did something to become ill or like we could get better if we “really wanted to”.
They will push our boundaries, gaslight us and yes - put us at risk for covid. So this is your reminder that it is ok to set and hold boundaries. It’s ok to protect yourself. If someone won’t be there at your worst - they don’t deserve you.
https://www.disabledginger.com/p/we-dont-do-sick-if-you-cant-hide
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans
Family Abandonment During Covid Pandemic. They 'Don't Do Sick'.
A look at relationship dynamics, ableism and the importance of setting (and sticking) to personal boundariesBroadwaybabyto (The Disabled Ginger)
This study is from 2022 but I'm just discovering it now, and .... Jeesh #covid #brain #viralpersistence #longcovidkids #longcovid
https://www.nature.com/articles/s41586-022-05542-y?fbclid=IwY2xjawGWUbpleHRuA2FlbQIxMQABHbkPu6ANFSZS8SoQnpQDja0R2JeJTcd5Ua2kXs-cuRLoIMFFzkHUI-NIXw_aem_qEEbP_evBb03neU41y78JA
https://www.nature.com/articles/s41586-022-05542-y?fbclid=IwY2xjawGWUbpleHRuA2FlbQIxMQABHbkPu6ANFSZS8SoQnpQDja0R2JeJTcd5Ua2kXs-cuRLoIMFFzkHUI-NIXw_aem_qEEbP_evBb03neU41y78JA
SARS-CoV-2 infection and persistence in the human body and brain at autopsy - Nature
A study reports the distribution, replication and persistence of SARS-CoV-2 throughout the human body including in the brain at autopsy from acute infection to more than seven months following symptom onset.Nature
What It’s Like to Have Long COVID As a Kid.
"I used to be a person who pushed myself academically, athletically, and personally. But with Long COVID, that only made me sicker"
"With chronic illness, slowing down isn’t quitting—it’s survival."
"Chronic illness changes you. It forces you to slow down, rethink what success looks like, and find new ways of measuring progress."
Source: https://archive.md/J0b5U
#LongCOVID @auscovid19
"I used to be a person who pushed myself academically, athletically, and personally. But with Long COVID, that only made me sicker"
"With chronic illness, slowing down isn’t quitting—it’s survival."
"Chronic illness changes you. It forces you to slow down, rethink what success looks like, and find new ways of measuring progress."
Source: https://archive.md/J0b5U
#LongCOVID @auscovid19
So basically treat everyone driving as if they are driving drunk. That's what I've been doing. I look both ways while driving through a GREEN light. I've seen more people drive through a 🚦 red light recently than I have the entire rest of my life!
"The OR of car crashes associated with COVID-19 was comparable to driving under the influence of alcohol at legal limits or driving with a seizure disorder."
(I believe "OR" stands for Odds Ratio?)
#Covid #LongCovid
https://www.neurology.org/doi/10.1212/01.wnl.0001051276.37012.c2
"The OR of car crashes associated with COVID-19 was comparable to driving under the influence of alcohol at legal limits or driving with a seizure disorder."
(I believe "OR" stands for Odds Ratio?)
#Covid #LongCovid
https://www.neurology.org/doi/10.1212/01.wnl.0001051276.37012.c2
REAL TALK
had i not had #LongCovid and #cancer, i would probably be freaking about now, but am surprised with myself that am relatively calm.
i've been +20 years marginalized for blogging about American fascism. what has me calm is that even back in January a lot of mainstream journalists and the whole Democratic Party leadership still refused to acknowledge Trump is running on fascism.
the fact that just days ago NY Times had to acknowledge it?
FUCKING FINALLY.
🧵
#USpol #2024Elections
had i not had #LongCovid and #cancer, i would probably be freaking about now, but am surprised with myself that am relatively calm.
i've been +20 years marginalized for blogging about American fascism. what has me calm is that even back in January a lot of mainstream journalists and the whole Democratic Party leadership still refused to acknowledge Trump is running on fascism.
the fact that just days ago NY Times had to acknowledge it?
FUCKING FINALLY.
🧵
#USpol #2024Elections
More proof of #covid and #longcovid damaging the heart. We know COVID causes serious heart conditions, heart attacks, etc., we have so many studies and stats, why this isnt important to the majority of people, why this us not leading to infection control measures like masking, is something I will never understand. But I'll be continuing to #maskup as I know #covidisnotover and #longcovid is a dice roll away, increasing chances each infection.
https://www.news-medical.net/news/20241101/Elevated-cytokines-found-in-the-blood-of-long-COVID-sufferers-explain-heart-problems.aspx
https://www.news-medical.net/news/20241101/Elevated-cytokines-found-in-the-blood-of-long-COVID-sufferers-explain-heart-problems.aspx
Elevated cytokines found in the blood of long COVID sufferers explain heart problems
University of Queensland-led research has found inflammatory markers in the blood of long COVID patients which could explain why many experience ongoing cardiovascular issues.News-Medical
People are angry that hospitals are bringing back mask mandates due to COVID outbreaks.
Patients like me are angry that we have to risk infection to get medical care. Some of us have died due to hospital acquired COVID.
Masks make sense in hospitals - why oppose them?
I’ve yet to hear a decent argument against mask mandates in hospitals.
The people who oppose them are almost always the ones screaming about how strong and healthy their immune systems are - so theoretically they never spend any time IN a hospital. Why do they care?
Inevitably people just trot out the tired “if your mask works then no one else needs one”… which just highlights that they’ve never spent any significant time in the hospital.
If you’re sick enough to need the hospital there’s decent odds something might prevent you from masking.
Even if you CAN mask - if you’re admitted what do you do when you need to eat, drink or brush your teeth? What if you require oxygen, having vomiting or airway complications?
The responsibility to stay covid safe shouldn’t be left to the patient.
It’s cruel and unusual punishment.
Mandatory masks mean that patients are protected by those around them - which is how it should be.
No one should have to risk covid to get care - and the normalization of hospital acquired covid needs to stop.
If you’re someone who opposes masks in healthcare - or who doesn’t understand WHY they’re necessary - please read my plea to healthcare workers.
Vulnerable patients feel unsafe. Expendable. Terrified.
Needing the hospital is scary enough - we shouldn’t have to worry about forced infection too:
https://www.disabledginger.com/p/a-plea-to-maskless-healthcare-workers
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhe
Patients like me are angry that we have to risk infection to get medical care. Some of us have died due to hospital acquired COVID.
Masks make sense in hospitals - why oppose them?
I’ve yet to hear a decent argument against mask mandates in hospitals.
The people who oppose them are almost always the ones screaming about how strong and healthy their immune systems are - so theoretically they never spend any time IN a hospital. Why do they care?
Inevitably people just trot out the tired “if your mask works then no one else needs one”… which just highlights that they’ve never spent any significant time in the hospital.
If you’re sick enough to need the hospital there’s decent odds something might prevent you from masking.
Even if you CAN mask - if you’re admitted what do you do when you need to eat, drink or brush your teeth? What if you require oxygen, having vomiting or airway complications?
The responsibility to stay covid safe shouldn’t be left to the patient.
It’s cruel and unusual punishment.
Mandatory masks mean that patients are protected by those around them - which is how it should be.
No one should have to risk covid to get care - and the normalization of hospital acquired covid needs to stop.
If you’re someone who opposes masks in healthcare - or who doesn’t understand WHY they’re necessary - please read my plea to healthcare workers.
Vulnerable patients feel unsafe. Expendable. Terrified.
Needing the hospital is scary enough - we shouldn’t have to worry about forced infection too:
https://www.disabledginger.com/p/a-plea-to-maskless-healthcare-workers
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhe
A Plea to Maskless Healthcare Workers from Vulnerable Patients
If you see a mask - wear a mask. Better yet - wear a mask all the time and show us you understand that we're still IN a pandemic. We are depending on you to keep us safe - please don't betray that.Broadwaybabyto (The Disabled Ginger)
From ME Research UK:
"Estimating ME/CFS prevalence in individuals with long COVID"
During the early phases of the COVID-19 pandemic, as the term ‘long COVID’ first emerged, Dr Anthony Komaroff raised a crucial question in an article:
"Will some people who get COVID-19 subsequently develop ME/CFS? … many people with ME/CFS say that their illness began with some kind of infection: a virus, a flu, a bad cold."
@longcovid @mecfs
#LongCovid #MEcfs #PostCovid #PASC #LongHaulers
"Estimating ME/CFS prevalence in individuals with long COVID"
During the early phases of the COVID-19 pandemic, as the term ‘long COVID’ first emerged, Dr Anthony Komaroff raised a crucial question in an article:
"Will some people who get COVID-19 subsequently develop ME/CFS? … many people with ME/CFS say that their illness began with some kind of infection: a virus, a flu, a bad cold."
@longcovid @mecfs
#LongCovid #MEcfs #PostCovid #PASC #LongHaulers
