Zum Inhalt der Seite gehen

Suche

Beiträge, die mit postcovidsyndrome getaggt sind

Press release for a new UK study:

"Nearly one in ten unsure if they have Long Covid. Almost 5% have the condition and socially disadvantaged groups are most affected"
https://www.eurekalert.org/news-releases/1076866

Free paper:
https://onlinelibrary.wiley.com/doi/10.1111/hex.70202

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19
News Release 17-Mar-2025 Nearly one in ten unsure if they have Long Covid Almost 5% have the condition and socially disadvantaged groups are most affected Peer-Reviewed Publication University of Southampton Facebook X LinkedIn WeChat Bluesky Message WhatsApp Email UNDER EMBARGO UNTIL 00:01 AM UK TIME ON TUESDAY 18 MARCH 2025 Almost one in ten people (9.1%) in England think they could have Long Covid but aren’t sure, according to a new analysis of NHS England survey data by the University of Southampton.

Nearly one in ten unsure if they have Long Covid

Almost one in ten people (9.1%) in England think they could have Long Covid but aren’t sure, according to a new analysis of NHS England survey data by the University of Southampton. Researchers also found that 4.
EurekAlert!
#COVID19 #COVID #LongCovid #PostCovid #PASC #LongHaulers #CovidIsNotOver #sarscov2 #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #Coronavirus #COVID_19 #covidー19 #novid #auscovid19 #neuropasc @NoVID @AusCOVID19 group @longcovid group @covid19 group @novid group

Recording with:

- Dr David Joffe: an overview of biological basis of Long COVID

- Dr David Tuller: on basis of psycho-behavioural therapy focusing on the PACE trial & a major #LongCOVID trial"

https://youtu.be/V9f_kjlz6Ho

From latest Science for ME update

@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Kirby Institute Dr David Joffe & Dr David Tuller - Is Long Covid psycho-behavioural or biological? State of evidence Recording of a recent and great talk at Kirby Institute, Australia. "In this talk, Dr David Joffe will provide an overview of the biological basis of Long COVID, while Dr David Tuller will examine the basis of psycho-behavioural therapy focusing on the PACE trial and a major Long COVID trial."
#cfs #LongCovid #mecfs #pwme #PostCovid #PASC #CovidIsNotOver #sarscov2 #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #postcovidsyndrome #covidbrain #Coronavirus #auscovid19 #neuropasc @MECFS group @AusCOVID19 group @longcovid group @covid19 group

Press release:
Long COVID could be costing U.S. $2.0-$6.5 billion annually

https://www.eurekalert.org/news-releases/1077514

Paper (not open access):
https://academic.oup.com/jid/advance-article-abstract/doi/10.1093/infdis/jiaf030/7972782

Comment: I think I have seen higher estimates. Still huge numbers

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19
News Release 19-Mar-2025 Long COVID could be costing U.S. $2.0-$6.5 billion annually The cost of an individual long COVID-19 case can range from $5,084 to $11,646 per year Peer-Reviewed Publication CUNY Graduate School of Public Health and Health Policy New York, NY | March 19, 2025: The current number of long COVID-19 cases may already be costing the U.S. $2.01-6.56 billion dollars per year, according to a study recently published in the Journal of Infectious Diseases. The study also showed that each long COVID case tended to cost society between $5,084 and $11,646. These estimates are based on a computer simulation model developed by the Public Health Informatics, Computational and Operations Research (PHICOR) team based at the CUNY Graduate School of Public Health and Health Policy (CUNY SPH) working with researchers from the CUNY Institute for Implementation Science in Population Health (ISPH) and Baylor College of Medicine.

Long COVID could be costing U.S. $2.0-$6.5 billion annually

The current number of long COVID-19 cases may already be costing the U.S. $2.01-6.56 billion dollars per year, according to a study recently published in the Journal of Infectious Diseases.
EurekAlert!
#COVID19 #COVID #LongCovid #PostCovid #PASC #LongHaulers #CovidIsNotOver #sarscov2 #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #Coronavirus #COVID_19 #covidー19 #novid #auscovid19 #neuropasc @NoVID @AusCOVID19 group @longcovid group @covid19 group @novid group

Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative

https://www.jmir.org/2025/1/e59217/

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots
Journal of Medical Internet Research Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative — Hannah L Mandel "The initial focus among clinicians on respiratory symptoms and widespread lack of knowledge around what were initially considered to be “atypical” presentations, such as postexertional malaise, ME/CFS, POTS, and dysautonomia, also contribute to missingness of relevant diagnoses within the EHR"

Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative

The benefits and challenges of electronic health records (EHRs) as data sources for clinical and epidemiologic research have been well described.
Journal of Medical Internet Research
#cfs #pots #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #neuropasc @MECFS group @longcovid group @pots group

From Cyprus:

Long-COVID from the perspective of neurologists at the outpatient clinic: A cross-sectional field study

https://www.tandfonline.com/doi/full/10.1080/01616412.2025.2472824

From the latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
Neurological Research Long-COVID from the perspective of neurologists at the outpatient clinic: A cross-sectional field study — Artemios Artemiadis et al. "In this small cross-sectional study, our aim was to delineate the symptom patterns among Long-COVID patients referred to an outpatient Neurological clinic and assess their impact on psychological, sleep, and overall well-being. Fatigue emerged as the most frequently reported symptom, followed by anxiety, myalgias, and concentration difficulties."
#LongCovid #PostCovid #PASC #LongHaulers #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #neuropasc @longcovid group

From Iraq:

Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs
PLOS ONE Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID — Wasim Talib Mahdi Al Masoodi et al. "a sizable portion of the variation in the physioaffective phenome was accurately predicted by a combination of biomarkers, including GALGALR1 signaling, CRP, PGE2, and z PBT - z SpO2"

Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID

Background Patients with Long COVID (LC) often experience neuropsychiatric symptoms such as depression, anxiety, and chronic fatigue syndrome (CFS), collectively referred to as the physio-affective phenome of LC.
journals.plos.org
#LongCovid #mecfs #PostCovid #PASC #LongHaulers #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #neuropasc @longcovid group

“Ultimately, you are on your own.” A qualitative analysis of barriers to health care from the perspective of patients with long COVID

In German with English abstract:
https://www.zefq-journal.com/article/S1865-9217(25)00046-7/fulltext

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs_de
Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen “Ultimately, you are on your own.” A qualitative analysis of barriers to health care from the perspective of patients with long COVID — Sabine Hammer et al. "The study shows that there are currently no adequate care concepts and structures for post-infectious illnesses and that activating therapies, mostly in connection with the assumption of a psychosomatic origin, lead to significant malpractice. The finding that the majority of respondents feel weakened, ashamed or harmed by their physicians is particularly dramatic. The data also provide evidence of systematic stigmatization and discrimination against those affected."
#LongCovid #PostCovid #PASC #LongHaulers #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #neuropasc @longcovid group @mecfs_de group

From Germany:

Clinical, histopathological, and radiological characterization of post-acute sequelae of COVID-19

https://oparu.uni-ulm.de/items/fc17b8f9-dfd3-456d-896e-bcfeafd10d4f

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19
Thesis: Ulm University Clinical, histopathological, and radiological characterization of post-acute sequelae of COVID-19 — Czech "Except for one outlier, the viral matter could not be associated with pathological processes, challenging the hypothesis that unresolved viral presence is the cause of chronic inflammation. The observations suggest that PASC represents a post-viral pathological process driven by bronchiolitis. The histological, serological, and radiological results within this PASC cohort align with the criteria of bronchiolitis following a mild COVID-19 infection."

Clinical, histopathological, and radiological characterization of post-acute sequelae of COVID-19

Numerous patients exhibit enduring symptoms following a Coronavirus Disease 2019 (COVID-19) infection, termed Post-Acute Sequelae of COVID-19 (PASC). The typical manifestations of PASC include fatigue, dyspnea on exertion, and cough.
oparu.uni-ulm.de
#COVID19 #COVID #LongCovid #PostCovid #PASC #LongHaulers #CovidIsNotOver #sarscov2 #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #Coronavirus #COVID_19 #covidー19 #novid #auscovid19 #neuropasc @NoVID @AusCOVID19 group @longcovid group @covid19 group @novid group

🧵
Unusual but sympathetic paper:

Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders

https://www.mdpi.com/1660-4601/22/2/275

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

1/
Abstract People with Long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and other complex chronic disorders consistently report having difficulty obtaining effective and compassionate medical care and being disbelieved, judged, gaslighted, and even dismissed by healthcare professionals. We believe that these adversarial interactions and language are more likely to arise when healthcare professionals are confronting complex chronic illnesses without proper training, diagnostic biomarkers, or FDA-approved therapies. These problematic conversations between practitioners and patients often involve specific words and phrases—termed the “never-words”—can leave patients in significant emotional distress and negatively impact the clinician–patient relationship and recovery. Seeking to prevent these destructive interactions, we review key literature on best practices for difficult clinical conversations and discuss the application of these practices for people with Long COVID, ME/CFS, dysautonomia, and other complex chronic disorders. We provide recommendations for alternative, preferred phrasing to the never-words, which can enhance therapeutic relationship and chronic illness patient care via compassionate, encouraging, and non-judgmental language.

Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders

People with Long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and other complex chronic disorders consistently report having difficulty obtaining effective and compassionate medical care and being disbelieved, judged, gaslighte…
MDPI
#cfs #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #neuropasc @MECFS group @longcovid group

The Orexin System and Its Impact on the Autonomic Nervous and Cardiometabolic System in Post-Acute Sequelae of COVID-19

https://www.mdpi.com/2227-9059/13/3/545

From latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @auscovid19 #auscovid19
Biomedicines The Orexin System and Its Impact on the Autonomic Nervous and Cardiometabolic System in Post-Acute Sequelae of COVID-19 — Ruhrländer et al. Review. "We assume that several symptoms that occur after COVID-19 are due to an imbalance in the OX system. In particular, factors such as vascular tone, cardiac and endothelial function, lipid metabolism, and neuropeptide regulation are crucial to the pathophysiology of the OX system, as well as PASC."

The Orexin System and Its Impact on the Autonomic Nervous and Cardiometabolic System in Post-Acute Sequelae of COVID-19

Orexins (OXs) are critical for regulating circadian rhythms, arousal, appetite, energy metabolism, and electrolyte balance, affecting both the autonomic nervous system (ANS) and the cardiovascular system (CVS).
MDPI
#COVID19 #COVID #LongCovid #PostCovid #PASC #LongHaulers #sarscov2 #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #Coronavirus #COVID_19 #covidー19 #auscovid19 #neuropasc @AusCOVID19 group @longcovid group @covid19 group

Sympathetic article; quotes 3 German experts

"Years after the pandemic, has the threat of #LongCovid subsided?"

https://www.yahoo.com/news/years-pandemic-threat-long-covid-153323420.html

Includes this "Depending on the symptoms, doctors will often recommend exercise therapy ..." but then that can be true for people without PEM

@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver

1/
dpa international Years after the pandemic, has the threat of Long Covid subsided? DPA Mon, February 24, 2025 at 3:33 PM GMT5 min read 4 Many Long Covid sufferers first have to learn to accept that even small household tasks burn up a huge amount of energy. Annette Riedl/dpa Many Long Covid sufferers first have to learn to accept that even small household tasks burn up a huge amount of energy. Annette Riedl/dpa After the initial global shock of the pandemic, another followed. Some people, it emerged, were surviving an infection, but not making a full recovery. About four years ago, it started to become clear that Sars-CoV-2, the coronavirus behind the pandemic, could impair mental and physical performance well beyond the initial infection. The phenomenon of symptoms lasting longer than four weeks has long since been given a name - Long Covid. However, medicine is still a long way from curing the causes of such long-term effects.

Years after the pandemic, has the threat of Long Covid subsided?

After the initial global shock of the pandemic, another followed. Some people, it emerged, were surviving an infection, but not making a full recovery. About...
DPA (Yahoo News)
#COVID19 #COVID #LongCovid #PostCovid #PASC #LongHaulers #CovidIsNotOver #sarscov2 #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #Coronavirus #novid #neuropasc @NoVID @longcovid group @covid19 group @novid group

I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome

Particularly relevant when similarities with the #LongCovid presentation in some people are being missed

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
APPENDIX 2. ME/CFS Symptom Prevalence and Severity (These prevalence and severity figures are from A definition-based analysis of symptoms in a large cohort of patients with chronic fatigue syndrome, P. De Becker, N. McGregor, and K. De Meirleir. Journal of Internal Medicine 2001;250:234-240.) A total of 2,073 consecutive patients with major complaints of prolonged fatigue were assessed. Among them 1,578 met the Fukuda criteria and of those, 951 met the Holmes criteria. The figures indicate the differences in prevalence and severity of symptoms between these patient groups.
#cfs #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome #covidbrain #neuropasc @MECFS group @longcovid group

From the Solve ME/CFS Initiative

People w/ #LongCovid may participate in a new clinical trial testing whether the drug baricitinib improves neurocognitive function & other functions diminished by Long Covid. Learn more about the trial led by Dr. Wesley Ely of
the Vanderbilt University Medical Center here:
https://ow.ly/paS250UOeWv

@longcovid
#PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain
@covid19 #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2

New Clinical Trial Will Test How Baricitinib Improves Neurocognitive Function in Patients with Long Covid - Solve ME/CFS Initiative

Patients with Long Covid may participate in an important new clinical trial—the REVERSE-LC trial (Evaluating Baricitinib on Persistent Neurologic and Cardiopulmonary Symptoms of Long COVID)—which will test whether the drug baricitinib improves neuroc…
Karman Kregole (The Solve ME/CFS Initiative)
#COVID19 #COVID #LongCovid #PostCovid #PASC #sarscov2 #pwlc #lc #postcovidsyndrome #covidbrain #COVID_19 #covidー19 @longcovid group @covid19 group

Effect of respiratory rehabilitation on quality of life in individuals with post-COVID-19 symptoms: A randomised controlled trial

https://www.sciencedirect.com/science/article/pii/S1877065724001039

Image is from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
Annals of Physical and Rehabilitation Medicine Effect of respiratory rehabilitation on quality of life in individuals with post-COVID-19 symptoms: A randomised controlled trial — del Corral et al. "The aim of this study was to assess the effect of adding inspiratory and expiratory muscle training to an [aerobic exercise] training program on short-term HRQoL and exercise tolerance in individuals with [LC]" "the differences between groups were not statistically significant for HRQoL, exercise tolerance, psychological distress, and lung diffusing capacity."
#LongCovid #PostCovid #PASC #LongHaulers #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome @longcovid group

Women and an unusually healthy cohort at greater risk of long-Covid, HSE study suggests

"#LongCovid is more common in ­Ireland among women and people who reported doing regular exercise before their illness, according to a new report."

https://m.independent.ie/irish-news/women-and-an-unusually-healthy-cohort-at-greater-risk-of-long-covid-hse-study-suggests/a1050583513.html

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC @covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
#auscovid19

Women and an unusually healthy cohort at greater risk of long-Covid, HSE study suggests

Long-Covid is more common in ­Ireland among women and people who reported doing regular exercise before their illness, according to a new report.
Eilish O'Regan (Irish Independent)
#COVID19 #COVID #LongCovid #PostCovid #PASC #LongHaulers #CovidIsNotOver #sarscov2 #pwlc #PostCovid19 #lc #postcovidsyndrome #covidbrain #Coronavirus #COVID_19 #covidー19 #novid #auscovid19 #neuropasc @NoVID @longcovid group @covid19 group @novid group

New from Canada/Ireland/UK/US:

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with
#LongCOVID...an international community-engaged qualitative research study

https://www.medrxiv.org/content/10.1101/2024.12.11.24318864v1

Also relevant to #MECFS

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Screenshot of abstract

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with Long COVID – Results from an international community-engaged qualitative research study

Introduction Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms.
medRxiv
#cfs #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome @MECFS group @longcovid group

Sweden:
"Despite broad criticism, the National Board of Health and Welfare will not update its knowledge support on post-infectious conditions."

Google English translation:
https://fof-se.translate.goog/artikel/socialstyrelsen-underkanner-whos-kunskapsunderlag-om-postcovid/?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp

Screenshot from Science for ME update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS
Sweden The research magazine Forskning & Framsteg writes about The National Board of Social Affairs and Health's guideline for post Covid and related conditions including ME/CFS. It has received a lot of criticism, among other for not including WHO's red flags regarding rehabilitation and safety for patients. Dr. Judith Bruchfeld says this is worrying and that she also misses information on POTS and breathing problems.

Socialstyrelsen underkänner WHO:s kunskapsunderlag om postcovid

Socialstyrelsens kunskapsstöd om postinfektiösa tillstånd presenterades i augusti i år och fick då skarp kritik från läkare, forskare och patientföreningar – vilka ansåg att det …
jonas.mattsson@fof.se (Forskning & Framsteg)
#cfs #pots #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome @MECFS group @longcovid group

The Institute for Neuro-Immune Medicine has posted a video (42 minutes): "Neurovascular Dysregulation During Exercise in ME/CFS and Long COVID."

In it Dr David Systrom talks about new research on neurovascular issues in #MECFS & #LongCOVID
https://www.youtube.com/watch?v=TD-eSXKvfq

#PEM @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid

- YouTube

Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.
www.youtube.com
#cfs #LongCovid #mecfs #pwme #PostCovid #PASC #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #lc #postcovidsyndrome #PEM @MECFS group @longcovid group

⇧