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Beiträge, die mit longhaulers getaggt sind

Women and an unusually healthy cohort at greater risk of long-Covid, HSE study suggests

"#LongCovid is more common in ­Ireland among women and people who reported doing regular exercise before their illness, according to a new report."

https://m.independent.ie/irish-news/women-and-an-unusually-healthy-cohort-at-greater-risk-of-long-covid-hse-study-suggests/a1050583513.html

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC @covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
#auscovid19

Women and an unusually healthy cohort at greater risk of long-Covid, HSE study suggests

Long-Covid is more common in ­Ireland among women and people who reported doing regular exercise before their illness, according to a new report.
Eilish O'Regan (Irish Independent)
#COVID19 #COVID #LongCovid #PostCovid #PASC #LongHaulers #CovidIsNotOver #sarscov2 #pwlc #PostCovid19 #lc #postcovidsyndrome #covidbrain #Coronavirus #COVID_19 #covidー19 #novid #auscovid19 #neuropasc @NoVID @longcovid group @covid19 group @novid group

New from Canada/Ireland/UK/US:

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with
#LongCOVID...an international community-engaged qualitative research study

https://www.medrxiv.org/content/10.1101/2024.12.11.24318864v1

Also relevant to #MECFS

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Screenshot of abstract

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with Long COVID – Results from an international community-engaged qualitative research study

Introduction Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms.
medRxiv
#cfs #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome @MECFS group @longcovid group

Sweden:
"Despite broad criticism, the National Board of Health and Welfare will not update its knowledge support on post-infectious conditions."

Google English translation:
https://fof-se.translate.goog/artikel/socialstyrelsen-underkanner-whos-kunskapsunderlag-om-postcovid/?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp

Screenshot from Science for ME update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS
Sweden The research magazine Forskning & Framsteg writes about The National Board of Social Affairs and Health's guideline for post Covid and related conditions including ME/CFS. It has received a lot of criticism, among other for not including WHO's red flags regarding rehabilitation and safety for patients. Dr. Judith Bruchfeld says this is worrying and that she also misses information on POTS and breathing problems.

Socialstyrelsen underkänner WHO:s kunskapsunderlag om postcovid

Socialstyrelsens kunskapsstöd om postinfektiösa tillstånd presenterades i augusti i år och fick då skarp kritik från läkare, forskare och patientföreningar – vilka ansåg att det …
jonas.mattsson@fof.se (Forskning & Framsteg)
#cfs #pots #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome @MECFS group @longcovid group

From ME Research UK:

"Estimating ME/CFS prevalence in individuals with long COVID"

During the early phases of the COVID-19 pandemic, as the term ‘long COVID’ first emerged, Dr Anthony Komaroff raised a crucial question in an article:

"Will some people who get COVID-19 subsequently develop ME/CFS? … many people with ME/CFS say that their illness began with some kind of infection: a virus, a flu, a bad cold."

@longcovid @mecfs

#LongCovid #MEcfs #PostCovid #PASC #LongHaulers
Key points - Long COVID and ME/CFS have overlapping symptoms, yet many studies overlook the proportion of individuals with long COVID who meet ME/CFS criteria. - Improving on previous research, Dr Leonard Jason and Joseph Dorri’s study reveals that 58% of their long COVID participants met ME/CFS criteria. Nevertheless, the authors acknowledged the study’s limitations and emphasise the need for long-term follow-up. - To improve future long COVID studies, symptom questionnaires such as DSQ-PEM could aid in determining the proportion of participants meeting ME/CFS criteria. - Given the predicted rise in disease burden and economic costs linked to ME/CFS as a result of the COVID-19 pandemic, thorough investigation is imperative.
#LongCovid #mecfs #PostCovid #PASC #LongHaulers @MECFS group @longcovid group

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