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Beiträge, die mit Covidlonghaulers getaggt sind

New from Canada/Ireland/UK/US:

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with
#LongCOVID...an international community-engaged qualitative research study

https://www.medrxiv.org/content/10.1101/2024.12.11.24318864v1

Also relevant to #MECFS

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Screenshot of abstract

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with Long COVID – Results from an international community-engaged qualitative research study

Introduction Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms.
medRxiv
#cfs #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome @MECFS group @longcovid group

Sweden:
"Despite broad criticism, the National Board of Health and Welfare will not update its knowledge support on post-infectious conditions."

Google English translation:
https://fof-se.translate.goog/artikel/socialstyrelsen-underkanner-whos-kunskapsunderlag-om-postcovid/?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp

Screenshot from Science for ME update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS
Sweden The research magazine Forskning & Framsteg writes about The National Board of Social Affairs and Health's guideline for post Covid and related conditions including ME/CFS. It has received a lot of criticism, among other for not including WHO's red flags regarding rehabilitation and safety for patients. Dr. Judith Bruchfeld says this is worrying and that she also misses information on POTS and breathing problems.

Socialstyrelsen underkänner WHO:s kunskapsunderlag om postcovid

Socialstyrelsens kunskapsstöd om postinfektiösa tillstånd presenterades i augusti i år och fick då skarp kritik från läkare, forskare och patientföreningar – vilka ansåg att det …
jonas.mattsson@fof.se (Forskning & Framsteg)
#cfs #pots #LongCovid #mecfs #pwme #PostCovid #PASC #LongHaulers #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid19 #lc #covidlonghaulers #postcovidsyndrome @MECFS group @longcovid group

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