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Beiträge, die mit Spoonies getaggt sind
(US) Telehealth Update
Image from Massachusetts ME/CFS & FM Association March 2025 e-newsletter:
https://massmecfs.org/newsletters/919-2025-03-march-newsletter
@chronicillness
@spoonies
@disability
#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
@longcovid #LongCovid #MEcfs
@mecfs
Image from Massachusetts ME/CFS & FM Association March 2025 e-newsletter:
https://massmecfs.org/newsletters/919-2025-03-march-newsletter
@chronicillness
@spoonies
@disability
#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
@longcovid #LongCovid #MEcfs
@mecfs
Hey spoonies in the USA if you want to WFH for a company supporting non-profits: https://mstdn.social/@abbynormative/114106850091527064
#PwLC #spoonies #spoonie
#PwLC #spoonies #spoonie
Heather (@abbynormative@mstdn.social)
My workplace is hiring again, this time for a junior data person who can help with csv file cleanup, creating hash files, and filtering contact lists.Mastodon 🐘
Here I am! Smile on my face under that mask. 😊
Pharmaceutical situation - Sharp steroid titration down. Must take in some capacity to stay alive (treats Secondary Adrenocortical Insuffiency and NTBI).
Apparently not enough! Went 20mg prednisone > 17mg, been symptomatic all day. Thing is, it's hard to realize sometimes. Ex. Just clicked for me now - nodding off, weakness, fatigue, stomach ache, respiratory, painful joints.
Just a little window into my disability!
#DisabilityMatters
#Spoonies
Pharmaceutical situation - Sharp steroid titration down. Must take in some capacity to stay alive (treats Secondary Adrenocortical Insuffiency and NTBI).
Apparently not enough! Went 20mg prednisone > 17mg, been symptomatic all day. Thing is, it's hard to realize sometimes. Ex. Just clicked for me now - nodding off, weakness, fatigue, stomach ache, respiratory, painful joints.
Just a little window into my disability!
#DisabilityMatters
#Spoonies
PS: Ach ja, falls ihr noch Tipps habt für #spoonies, die von Twitter umziehen wollen, wie das möglichst kräfteschonend vonstatten gehen kann, wäre ich ebenfalls sehr dankbar! Möchte ungern Menschen zurücklassen, während der Rest von uns es sich hier gemütlich macht!