Here's a message for parents: If your kid is autistic *TELL THEM*.
I get so sad reading stories of people who struggled thinking they were morally broken until they found out they were different, only to discover that others had the word that explained things, but didn't want to share it.
Nobody catches autism by being told they are autistic. It doesn't make you more autistic. It just lets you know you are different, not defective.
I get so sad reading stories of people who struggled thinking they were morally broken until they found out they were different, only to discover that others had the word that explained things, but didn't want to share it.
Nobody catches autism by being told they are autistic. It doesn't make you more autistic. It just lets you know you are different, not defective.
JimmyB (he/him) •
:neuro: Antonius Marie ⚧ •
(thankfully at this point I think she's realised that she wasn't being ... appropriate about it, and while my nephew hasn't had an evaluation, it's because while he agrees with my assessment that he's probably autistic ... he doesn't want to deal with the "official" right now)
JimmyB (he/him) hat dies geteilt
JimmyB (he/him) •
Makes complete sense to me.
@joelle
:neuro: Antonius Marie ⚧ •
We're not physically in the same space often (1-2 a year), but during that time we talk a lot. And not uncommonly we talk about everything and nothing (which has led to me sharing stories from my childhood and them going "... how did no one realise you were autistic?" <.<)
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JimmyB (he/him) •
:neuro: Antonius Marie ⚧ •
1) I lived up until I was 40 thinking that I was "broken", because everyone else *obviously* have the same challenges I do, and *they* can handle it! (no ... no they don't. Most *really* don't <.<)
2) I'm still not fully sure who I am underneath the mask, and I've been working on that since '22 ... I've been "playing a role" my entire life, without ever even *realising* it, and early on I had this deepseated fear that ... what if I unmask fully and realise that there's nothing left? That the true me died years ago? At this point I'm pretty sure that's not true (part of my core self is wanting to be kind and do least harm--not to people-please/avoid "offense" but to avoid *hurting* others) but it's still a scary ghost <.<
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JimmyB (he/him) •
My big sis is seeking a DX right now - aged 57. She's convinced but the challenge is the DX criteria are clear: you cannot acquire autism. You are born autistic. However, in a world where girls mask, the DX process doesn't work brilliantly, because parents will say, rightly, that their daughter didn't show autistic traits as a child.
So for her this is a problem: she presented 100% NT until later in life.
:neuro: Antonius Marie ⚧ •
I can 100% say that she didn't present allistic, and I don't even know her ;)
But yeah. There's *so* much stereotypes going around. And too many refuse to recognise that autism isn't "what others can perceive". Yes, part of it can occasionally be perceived by others ... but it's what it looks like from *our side* that really matters.
Part of the masking-for-girls also splashes onto other groups, for similar reasons: we're raised (whether intentionally or not) to handle other people's (the "more important ones") feelings. Which means making *us* less, and smaller, and do what makes others feel comfortable, even if we suffer for it (now to be clear: I'm not saying that those raised as white boys *never* end up being taught those lessons, just that it's a different thing for people perceived as girls, or in other ways "marginalized").
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JimmyB (he/him) •
I don't think that's a massive problem TBH, though if she is not autistic (and I've no idea) then misdiagnosis as a kind of support won't really do too much for her and isn't great for people who are autistic.
It's really difficult.
:neuro: Antonius Marie ⚧ •
And I'd say that whether misdiagnosis is a problem ... Well, that depends *a lot*. If she has, say, five of the seven traits, then honestly? Any coping mechanisms and whatnots that work for either of those five traits *will likely work for her*.
If she's on the fediverse, tell her to follow the hashtag and the group. Because even if she *isn't* autistic, some of our tips & tricks might help, if she's got particular issues.
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JimmyB (he/him) •
Misdiagnosis? Well - suboptimal maybe, but not the hill to die on. And actually - she might well be autistic so...fine! She definitely thinks she is and just respecting that, helps her. So this is a conversation I would never have with her - because it just wouldn't help. If she says she's autistic - I don't argue. Fine.
Janet •
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JimmyB (he/him) •
😀
Exactly: each of us has to manage a path, and we need empathy and support sometimes to stay on it.
@melindrea
Janet •
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Janet •
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JimmyB (he/him) •
Likewise parents who cannot accept their child for who they are: they too are products of complex conditioning. All we can do is educate I suppose.
@melindrea
@joelle
Janet •
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JimmyB (he/him) •
My old mum continuing to insist that 'thousands of UK primary school teachers are being fired because they refuse to teach kids that they can be trans' doesn't make me want to go see or talk to her much.
Likewise the 'everyone wants a diagnosis today'.
Hmmm...
But again. Horrible though she is - and my god she is - she's also a product of a horrific environment so had no chance either.
@melindrea @joelle
Janet •
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JimmyB (he/him) •
And yes - Dad was the balance. They were both fanatically religious (I grew up in an RC cult) but Dadmellowed a lot in his old age and was lovely. Mum on the other hand... Her latest wheeze is that she's decided she wants to move into an old people's home (run by a local church) and therefore needs to clear her house. In advance.
Not doing it Mum.
@melindrea @joelle
Janet •
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Silver Arrows •
It wasn't until my late twenties when I learnt about Aspergers properly. If I had known at fifteen, I could have got my diagnosis, I could have got support (maybe) and at least not spent another 12 years hating myself and wondering why I just couldn't fix myself and be like the other women.
#autism #actuallyautistic #neurodivergence
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PatternChaser •
...we don't know very much today! But yes, back in the 70s, and before, our attitudes were ... shamefully primitive.
If I had been diagnosed #AuDHD in the 50s, when I was born, I would've been put quietly away in an institution, and never seen in normal society. I would have been 'disappeared'. 😭
Hugs4friends ♾🇺🇦 🇵🇸😷 •
Seems to me that Regressive politicians want to go back to those days. Shut away, out of their sight. @alexadeswift @SilverArrows @actuallyautistic @joelle
Kevin Davy •
Due to speach and reading delay when I arrived at school, not to mention lack of eye contact and not even trying to interact with anyone. I avoided that destination by the skin of my teeth. Back then in the 60's if they'd actually tested me for autism, rather than just thinking that I was terminally stupid, I wouldn't have.
Goiterzan/Amygdalai Lama •
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I managed to avoid it too. I mean, is it free when they put you away? We weren’t the sort of family could afford anything.
Hugs4friends ♾🇺🇦 🇵🇸😷 •
Special School was daycare for children who had physical and intellectual disabilities which precluded them from attending 'mainstream' education. We also had The Spastic Centre for children with Cerebral Palsy. Schools for The Deaf, and for The Blind.
But the ones that still get the most funding, are the schools for the priviledged, the elite, and the ones most likely to include future eugenicist politicians. @pathfinder @PatternChaser @alexadeswift @SilverArrows @actuallyautistic @joelle
Alexa (She/Her) 🏳️⚧️ •
It was a church school with mandatory services every day of the week.
Hugs4friends ♾🇺🇦 🇵🇸😷 •
Goiterzan/Amygdalai Lama •
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Yeah, same in this colony too, Canada, I guess.
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I don't wish I was simply stored or institutionalized, but I do wish there was something between institutionalized and punted out into the world with a "good luck." I'm glad they didn't send me away, but I wish they didn't send me away alone and all in adulthood.
Hugs4friends ♾🇺🇦 🇵🇸😷 •