Zum Inhalt der Seite gehen


Are there some who are experienced with #autism on here? I've been in therapy for almost a year now and I have to take a specialized test. It certainly would explain many things in my life but I still kinda doubt it, because I do not have those typical things I associate with autism such as stimming or difficulties making friends. On the contrary, I am good in socializing when the context is clear, eg. conferences. I mean I do put on a show and I am exhausted after it for a few days...
... but isn't that normal? Things that are hard for me is reading faces and at the same time listening to what they say if I don't know the person I talk to well enough. I absolutely HATE noises. They distract me to a point where I cannot think clearly anymore. I prefer to talk to ONE person and not multiple. Meetings are a pain and all that. But I am still good at it (I think). But all relationships have failed because I speak what I think and I realize much later that sometimes you cannot say
what you think.
#ActuallyAutisticElder here. Those things you have described are as much a part of being Autistic, as the stimming and being an introvert.
Autistic traits are usually human traits, so it's really easy to think "well everyone does that so I can't be autistic". Similarly, there might be lots of things you're already doing that look neurotypical but are actually autistic traits. For example, as a long-haired female, I will constantly play with my hair when it's down, which looks "normal" on the outside but is actually a kind of soothing stim.

It tends to be the intensity of a feeling that sets an autistic person apart. That something is that little bit louder or harder or more difficult than a neurotypical person might find it.

People's profiles tend to be really spiky as well. Lots of autistic people thrive in social situations and it fuels them. For others it can be hugely draining and require days of recovery time. There are no rules!

What can be helpful is hanging around the #ActuallyAutistic community, hearing about other people's stories, and seeing what resonates with you.

And whether you get a diagnosis or not, if there's something you don't understand about yourself or want help with, it's almost guaranteed someone else is going through something similar and has some tips. I've learnt so much about my own wiring by talking to people here!
There is no one size fits all autism. We all tend to have our own spiky skills sets and unique profiles. We can thrive in some circumstances and fail completely in others. Often it's to do with whether we are interested in something, other times it maybe because of the environment we are expected to perform in. Sensory issues and processing is a large factor. We can often appear contradictory and inconsistent about things, at some moments being highly proficient, at other times unable, or barely able, to do something.
This is all part of why realising you are autistic is a process and also why it can be difficult for an external observer to see it in you. And yet in some way we can recognise and understand each other, in the ways we never have with virtually anyone else. The more time you spend reading and interacting with autistics, the more you will see yourself and in turn be recognised. It is a form of peer review, more accurate than any measurement.
Hi! Autistic (diagnosed within the last five years) here. I, too, thought it normal to be exhausted after peopling. I'm quite social, I'm good at talking with people, and all those other things. I even have quite high empathy.

Are you sure you don't stim? How about tapping fingers, playing with pens, chewing at the inside of your cheek, tense-relax specific muscles, wiggle your toes inside your shoes, hum, suck teeth, cluck with your tongue, snapping fingers, cracking fingers, rolling your shoulders ... all of those can be used as stimming, not just what the stereotypes say.
Wow. Interesting and thanks for sharing. I definitely do wiggle my toes! I always "snap" the big toe against the one next to it back and forth. Playing with pens is something I always do in class or on the phone. Especially on the phone. I would feel "empty" without it. But isn't that also something "normal" people do?? And I wonder why that wasn't diagnosed when I was young at routine checkups we have for children in Germany?
It's honestly only been rather recently that psych has started to recognise that autism is more than the stereotypes. I wasn't even on the charts, because I was vocal, smart, good at (subconsciously) doing eye contact.

I was 9 when I told my mom that I never smiled. I was always different from other kids too. I was hurt by things they weren't, and I didn't always react the way they expected (and they didn't react the way *I* expected).

Have you ever been in the situation that there's something you need to do--maybe even *want* to do--but you just ... can't? Or that you procrastinate and get overwhelmed easily. Maybe there's stuff that you "should" be able to to do, but it feels like you *literally can not*?

I recommend checking the hashtag #ActuallyAutistic and the group @actuallyautistic (the "actually" is in contrast to people who posit their expertise because they know someone who's autistic, not in contrast/opposition to people who are self-realised or just wondering and unsure)
@actuallyautistic Thanks for sharing. Well, I resonate a lot with the *things I should be able to do* but just cannot. A teacher in highschool talked to my mom that it is odd because I am obviously not dumb as I would write elaborate essays in german class that were considered to be on a level above my age but then just completely fail at very simple tasks. Others would make fun of me why I am so *slow* and stuff. And I would get overwhelmed a lot, yes. From there it derailed and my
@actuallyautistic highschool "career" was awful. I still have bad dreams about highschool. It was hell most of the time. lol.
@actuallyautistic

An “uneven profile of abilities” is one of the characteristics of autism.

One of the best articles on this:

https://neuroclastic.com/its-a-spectrum-doesnt-mean-what-you-think/
@actuallyautistic Thanks for this. It's good to learn new things and as it turns out my understanding of autism wasn't understanding at all.

It's still difficult to understand, but I'm starting to get it a bit more. Here's to future understanding!
@actuallyautistic

There's often conversation about the fact that ... we don't know what an autist without trauma looks like. What autism would look like without the people-pleasing and masking box that many of us are pushed into.

And this is also core of the stereotypes of autism. "Everyone" knows that "real autists" are shut down, staring at a wall, rocking and hitting their heads into the wall. But that's not true. You know what type of autist does that? One that is *currently stressed out of their mind* and traumatised by it. We shut down (which is an internalised form, more or less, of a meltdown) because we have been overstimulated: too much noise, too bright lights, clothes that are itching, too many people ... And not allowed (or knowing how to) cope with this. Stimming helps us drain some of that stimulation, to hopefully have us *not* end up in that extreme stress that people claim is "just how real autists are".
It is not a coincidence at all that I didn't start thinking "could I be autistic?" until after I became a parent - up until that time I could mostly just avoid or leave overwhelming situations and choose comfort whenever possible (had a lot of privilege in my earlier life), and then suddenly I found out what happens when I literally cannot leave the source of the overstimulation 😬
@Dale_Poole @nellie_m @pythno @actuallyautistic
@actuallyautistic Same, I only realised I might be more than a bit ND after parenthood took a wrecking ball to the lifestyle I'd built for myself. It was only then I could see why I wasn't thriving like many others seemed to, my self-imposed boundaries were my safe place and my prison. I can thank my kids for that, though I could do without the panic attacks and meltdowns.
I believe that 'outside pressures' create problems with parenting. 'Baby should be doing this' at a certain age, causes anxiety, because most of us need to do things just right. Most of the time, I enjoyed being a Mum. Like being self-employed. @3TomatoesShort @melindrea @Dale_Poole @nellie_m @pythno @actuallyautistic
All inside pressures for us. We even had a village (3 other adults we lived with who helped immensely) - but a baby who won't stop crying and multiple years of heavily fragmented sleep sucks a lot, no matter how much help you have.
@stardot @melindrea @Dale_Poole @nellie_m @pythno
@actuallyautistic my problem was noise, our first born wasn't a problem for me, he was quiet, easy going, I felt I could handle this parenting thing. Our 2nd born, she was something else, very strong willed and ear piercing screams to get what she wanted (everything). The combination of having two children exacerbated it more. Chronic, extreme overstimulation and exhaustion was a mix that almost landed me in hospital.
@actuallyautistic kind of tangential, but long division was the one thing I always struggled with, even though I was good at maths. I didn't understand it until we did algebraic division in secondary school. And I've promptly forgotten it again.

Also, I just didn't get WHY we had to do long division at all. My mum taught me short division and I just couldn't for worlds understand why we had to take this pointlessly scenic route. I still don't. Algebraic division is the only time this skill was needed for me.
@actuallyautistic yes we were taught long division purely by rote with no explanation why it worked that way. I had trouble memorising the steps so I never could do it properly
I loved long division, but hated algebra. Loved geometry, and hated simultaneous equations. I can still do simple maths in my head, though it takes longer now. But my habit of thinking the problems through, made me seem dull-witted. School can be hell for some autists, and heaven for others.😬😉 @SilverArrows @pythno @melindrea @actuallyautistic
@actuallyautistic I hated school. I was academic, but by no means a genius. I was just your typical socially inept nerd. I used to spend most of my lunch breaks alone, because the girls didn't wanna know. They started segregating library use, so each year group had a certain day, so I couldn't even spend my lunch in the library. I think in my last two years, I would spend some break times with the boys, because I had more interests in common with them than the girls (Formula 1 was my obsessive interest at the time).

I was very childish yet at the same time, my written work was very Stacey McGill (ie sophisticated 🤭). "How do you write so well when you chat so much crap?" was a quote from a classmate.

In sixth form it wasn't such a big deal. We had computer rooms and the world's slowest ADSL. But it was okay. I had computers!

I wrote more about it here (needs updating though): https://www.deviantart.com/kidliquorice/art/Being-Self-Diagnosed-What-Friendship-Never-Meant-375445442
@actuallyautistic

I spent a lot of time in the library too. I had a couple of good friends, but I was mainly weird and bullied. Thankfully the librarian was wonderful (and it helped that I was trusted enough to do a lot of stuff with the computers, helping out with that).

There's a word in Swedish that translates as "little old". Someone that acted much older than their age. Not necessarily in the "grew up too early due to trauma" type of maturity, but with grown-up thoughts and vocabulary while far from being that. I was often called that: Lillgammal
Dieser Beitrag wurde bearbeitet. (3 Wochen her)
Reading was my escape, my comfort, and my joy. I also spent quite a bit of time on my own, or with other lame ducks. @Zumbador @pythno @melindrea @actuallyautistic
@actuallyautistic Interesting that at least some of us appear to be much better at written than spoken communication. That's me, too. But the one year I was a college lecturer in philosophy, I discovered that nearly all of my students were the opposite! They seemed quite articulate in classroom discussions, but they could barely connect one sentence with the next on paper. Maybe inversion of this order of skills is a typical autistic trait?
I am a visual learner. Spoken instructions confuse me. Put it on paper, and I can follow it at my own speed, which may even be quicker than spoken. Also, the required eye contact makes me slower. I miss bits. @SilverArrows @Zumbador @pythno @melindrea @actuallyautistic
@actuallyautistic

that's a big reason why podcasts aren't my favourite thing: I can't focus if it's only hearing. I can watch videos and movies, but I often prefer having closed captions. Lately I've been listening to a podcast (Magnus Archives, amazing!) but the best way or me to be able to understand it is to read the transcript while listening to it.
I'm not keen on podcasts. Or audiobooks. I prefer transcripts, and ebooks. But, when I want to know how to do a task, I watch tutorials on you tube. @dedicto @SilverArrows @Zumbador @pythno @actuallyautistic
@actuallyautistic I was struggling a lot in this new job, because all my instructions are verbal and I've already forgotten. I bought a white board for reminders, but for the instructional parts, I need to study at home with my homie #CalvinJones, take notes and print screenshots.

But that's a lot of effort, and I'm lazy haha! I'm meant to be studying now actually.
@actuallyautistic

I think one of the best things I learned from my mom (maybe autistic, certainly had some of the traits) was to take notes about any steps.

When I started my first job, there was one part I hadn't done, so when my coworker showed how to do it, I wrote down every step. ... of course, that assumes that the people are open to "weird behaviours" like that >.<
@actuallyautistic

That reminds me of my mum (who was almost certainly AuDHD). My parents ran a small business, and when the admin person went on maternity leave, my mum got her to write a 'book of words' (as she called it) with detailed explanations on how to do *everything*. She still used it over 10 years later for monthly tasks.
@actuallyautistic It could be that, or it could be that we have ... a better chance at form our thoughts when writing (or both, for that matter).

I don't revise my toots too much (try to fix typos if I see them, but not much beyond that), but even there I can get my thoughts down coherently and if people forgot what we were talking about ... they can read the toot I responded to. But in writing (fiction or not), I can polish every thought, every word.
@actuallyautistic I used to have speech difficulties. Even if I rehearsed in my head what I wanted to say, the signal between my brain and mouth got scrambled and I'd find it hard to not come out with a garbled mess. I had to speak in short sentences. If I could get out a long sentence without tripping over my words, it was a big victory in my mind.

But I do remember monologuing without problems, so it might have been the pressure of social interaction scrambling my brain like that.

That cleared up after I cut eggs out my diet. I still feel a little twinge of victory though when I can get out a long sentence.
@actuallyautistic Interesting! It sounds very close to what some nonspeaking autistics experience — except that you were able to make it work in the end.

The connection with eggs is also intriguing. Eggs are a principal dietary source of lecithin, which can in turn be a source of choline, and thence of the neurotransmitter acetylcholine, which is critically important for voluntary muscle movement — including speech. Could your speech issues have been caused in part by an excess of acetylcholine?
@actuallyautistic Are you thinking of the SLUDGE syndrome? That's from overstimulation of the muscarinic acetylcholine receptors:

Salivation
Lacrimation (tears)
Urination
Defecation
Gastric secretion (stomach acid)
Emesis (vomiting)

Nasty indeed. But if the acetylcholine excess primarily affects nicotinic receptors, as might happen with an excess of its dietary precursor lecithin, you wouldn't see SLUDGE. You'd get effects on the skeletal muscles, such as shoulder and back tension — or speech problems, if the nervous system is otherwise predisposed to such?
@actuallyautistic Probably. An excess of acetylcholine itself (as opposed to poisons and drugs, like muscarine and bethanechol, that selectively activate only the muscarinic receptors) adequate to trigger SLUDGE, would probably activate the nicotinic receptors so strongly as to cause fatal spasms and convulsions. GB nerve gas, which works that way, is nicknamed "weteye" because one of its first symptoms is lacrimation (tearing) — the L in SLUDGE.