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We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride"
https://thesicktimes.org/2024/11/05/we-set-out-to-make-our-invisible-illness-visible-in-south-africa-with-sick-pride/
"SICK Pride. SICK stands for the Society for the Inclusion of Chronic Knowledge"
#MEcfs #LongCovid @mecfs @longcovid
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We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride"
https://thesicktimes.org/2024/11/05/we-set-out-to-make-our-invisible-illness-visible-in-south-africa-with-sick-pride/
"SICK Pride. SICK stands for the Society for the Inclusion of Chronic Knowledge"
#MEcfs #LongCovid @mecfs @longcovid
1/
We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride - The Sick Times
How can people with energy-limiting conditions march for our rights if we have negligible physical capability and exertion worsens our symptoms? My colleague Mlindeni Gabela and I are pioneering a new kind of protest in South Africa: SICK Pride.Sam Pearce (The Sick Times)
Tom Kindlon •
“It is a savage irony that those of us with energy-limiting chronic illnesses who are far more functionally disabled than the conventional wheelchair user battle to be recognized as marginalized.”
#PwLC #PwME
#mecfs #longcovid @mecfs @longcovid
Hugs4friends ♾🇺🇦 🇵🇸😷 hat dies geteilt
Tom Kindlon •
“Those of us who are so severely disabled by ME and Long COVID that we are rarely able to leave our houses — or even our beds — suffer from an invisibility so total, most people are completely unaware of our existence”
#MEcfs #LongCovid
@mecfs @longcovid
Hugs4friends ♾🇺🇦 🇵🇸😷 hat dies geteilt
Vanalope •
It's also wild when research groups reach out to you and require in person vists for their study.
Like wtf man, you're automatically excluding those w severe travel limitations. Researchers really need to reconsider that aspect.
Hugs4friends ♾🇺🇦 🇵🇸😷 hat dies geteilt
Hugs4friends ♾🇺🇦 🇵🇸😷 •