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I don't know if threads work well here...

I have a disorder called PMDD (common co-morbidity of ADHD). My PMDD is classed as severe.

For 2 weeks out of every month, my life changes drastically. I get many symptoms, but the main ones are extreme fatigue, brain fog, depression and hopelessness.

#PMDD #MentalHealth #Women

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#mentalhealth #Women #pmdd
Kristie
I do everything I can to be well. Up at 6am to take meds hours before food. No caffeine. No gluten. No dairy. Meds after breakfast. Quiet days. Limited time online. Carefully curated communication. No news. Sobriety. Low sugar. Meds again. Bed around 10pm.
Kristie
The NHS hasn't helped at all, and so I see a nutritionist who has helped so much but is very expensive.

I always thought that if I did everything right, I'd be completely well. Turns out that's not the case, and I think I'm only fully coming to terms with that now.
Kristie
It's hard to have two weeks every month stolen. Makes it very hard to make plans and form habits, too.

And no matter how many months and years go by, I can never get used to going from being relatively functional and well to the opposite.
Kristie
As I said, I have gotten so much better through seeing a nutritionist, and I'm happy to pass on what has helped.

Perimenopause (as I'm finding out) is very hard for women with PMDD, and there is no real support.
Kristie
But yes, I think I'm only really emotionally coming to terms with having a chronic illness now, at age 40.
Kristie
I'm posting about PMDD because between 1% and 3% of women suffer from PMDD globally, and many aren't aware, are even told it's normal. Estimates suggest that these percentages increase to 92% for Autistic women and 46% for women with ADHD.
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