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"Most participants grieved for lost hobbies, abilities and opportunities and most participants spoke about inconsistent, fluctuating educational support for their ME/CFS needs"

https://research.manchester.ac.uk/en/studentTheses/what-is-the-psychological-and-educational-impact-of-being-an-emer

Screenshot from latest Science for ME weekly update

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Thesis: The University of Manchester What is the psychological and educational impact of being an emerging adult living with ME/CFS? A qualitative interpretative phenomenological analysis — Emma Williams "Feeling misunderstood was at the heart of many psychological and educational experiences." "All participants reported ME/CFS has restricted their lives, bodies or future. A detrimental tendency to push beyond energy capacity was exacerbated by pressure, frustration and/or denial. Most participants grieved for lost hobbies, abilities and opportunities and most participants spoke about inconsistent, fluctuating educational support for their ME/CFS needs."
#cfs #mecfs #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome @MECFS group
Hugs4friends ♾🇺🇦 🇵🇸😷
Having been abandoned to fate at the outset, so that they acquired ME/CFS through unnecessary exposure to a potentially deadly pathogen, they are now expected to muddle their way through a life they never envisioned for themselves.☹😣 @mecfs
@MECFS group
Dieser Beitrag wurde bearbeitet. (3 Wochen her)
ChookMother 🇦🇺🦘
@mecfs Yeah. You have to take care of the sick person whle being the sick person, because no-one else is doing it.
@MECFS group
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