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Beiträge, die mit longCovid getaggt sind
Abnormal Coronary Vascular Response in Patients with #LongCOVID Syndrome – a Case-Control Study Using Oxygenation-Sensitive Cardiovascular Magnetic Resonance
https://www.sciencedirect.com/science/article/pii/S1097664725000523
Image is from latest Science for ME weekly update
Hashtags:
@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19
1/
Identifying commonalities & differences between EHR representations of #PASC & ME/CFS in the RECOVER EHR cohort
https://www.nature.com/articles/s43856-025-00827-5
"These findings suggest symptom management approaches to these illnesses could overlap"
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2
Identifying commonalities and differences between EHR representations of PASC and ME/CFS in the RECOVER EHR cohort - Communications Medicine
Powers et al. investigate commonalities and differences between electronic health record patterns associated with post-acute sequelae of SARS-CoV-2 infection and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).Nature
"Millions of long-Covid patients continue to struggle with cognitive difficulties"
Source: https://archive.md/bSXmv
@auscovid19 #LongCOVID #COVIDisNotOVER
GPs say they lack the time to diagnose the growing number of patients.
Specialists report wait times of up to 12 months due to a shortage of GPs trained in recognising long COVID symptoms.
#LongCOVID @auscovid19
https://www.abc.net.au/listen/programs/am/shortage-of-long-covid-clinics-/105177140
Shortage of Long Covid clinics
An increasing number of Australian doctors are walking away from their general practice to open their own long covid clinics.Kathleen O'Connor (ABC listen)
Die Folgeerkrankungen nach einer Infektion (oder multipler) sind durch mannigfaltige Studien gezeigt worden - auch bei Kindern.
Ich verweise hiermit auf die geehrten Kolleg:innen:
https://g-f-v.org/fuenf-jahre-covid-19-anmerkungen-der-gesellschaft-fuer-virologie-zur-aufarbeitung-der-covid-19-pandemie-in-deutschland/
#CovidIsNotOver #mecfs #PostCovid #LongCovid @ProtectTheKids
Danke @wirsindverdi!
Endlich nimmt sich eine Gewerkschaft des Themas #COVID19 und seiner Folgen #LongCOVID, #PostCOVID, #MECFS an.
Übrigens: #CovidIsNotOver. Für niemanden.
https://gesundheit-soziales-bildung.verdi.de/service/mittendrin/mittendrin-nr-11/++co++19d8b622-0985-11f0-9f1a-332caa146d61
Es ist nicht vorbei
Hunderttausende leiden unter Spätfolgen einer Corona-Infektion, darunter besonders viele Beschäftigte aus dem Gesundheits-, Erziehungs- und Sozialwesen.gesundheit-soziales-bildung.verdi.de
Mandate N95s vs Mandate COVID-19. The real Smokey Bear would #WearAMask #n95 because #CovidIsNotOver #LongCOVID and would require #MasksInHealthcare
For more free Covid Awareness Works visit https://the-maskers-comic.yolasite.com/
https://corical.immunisationcoalition.org.au/longcovid
#Covid #LongCovid
Covid Risk Calculator | Immunisation Coalition
Australian Covid Risk Calculator by the Immunisation Coalitioncorical.immunisationcoalition.org.au
An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases - The Sick Times
Without one, Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up.Sam Pearce (The Sick Times)
This is the problem with ignoring a pandemic in favour of a “you do you” approach.
There’s so much Covid that most people get it at least once per year. Their immune systems don’t have time to recover before they become infected again.
Disability advocates have been screaming about this for years. We beg people to mask up for their own protection and to make public spaces safer and more accessible for us.
We don’t yet know what the long term prognosis will be after 5, 10 or 15+ infections.
Wear a mask. Clean and ventilate the air. Do your part to minimize the spread.
https://www.cidrap.umn.edu/covid-19/covid-19-may-put-patients-risk-other-infections-least-1-year
#covidisairborne #covidisnotover #wearamask #longcovid #sarscov2
- hypersomnia
- complex sleep disturbances
- postural orthostatic tachycardia syndrome, or POTS?
Those interested in participating in the trials can contact the clinic for screening to see if they are eligible. The team can be reached via email at covidtrialsuva@uvahealth.org, or by phone at 434-243-4008 or toll-free at 855-882-5334.and they seem like good folks:
“We see patients coming in who are frustrated because they look fairly normal, but they cannot fully function and are not being believed,” she said. “So, for those people, I want to say this is truly a disease and you are not imagining anything.”#COVID19 #COVID #LongCOVID #PwLC #LC #PEM #PostExertionalMalaise #spoonie #spoonies
24 - 30 Mar 2025
This week's research articles, media items, advocacy and other news relating to #MECFS and #LongCovid
@mecfs
https://www.s4me.info/threads/news-in-brief-march-2025.43011/#post-597543
News in Brief - March 2025
This thread has a Science for ME 'News in Brief' post for each week in March 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman....Science for ME
Never let anyone silence you or convince you that your voice doesn’t matter.
We all have power, and even those of us who are disabled can make a difference in our own way.
Speak up, demand accountability and work together. Change is possible!
https://thesicktimes.org/2025/03/28/update-recover-long-covid-pathobiology-grants-restored/
#uspoli #longcovid #nhs #hhs #covidisairborne #covidisnotover #chronicillness #disability
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative.sick times (The Sick Times)
And it should definitely be okay to wear a mask to avoid a virus! (flu, Covid, etc)
No. Mask. Bans. Ever!
#NoMaskBan #Covid19 #LongCovid #CovidIsNotOver #Ableism #Eugenics #Disability
#Covid #LongCovid #CovidIsNotOver
Reposting link for broader exposure, I hope you don't mind. Significant article. Regrettable 'prove you're human' gatekeeping, but worth surmounting the harassment.
"‘Something was wrong with my brain’: How covid leaves its mark on cognition"
https://archive.md/j28FD
Yet more funding has been cut, including to a project that was nearing completion.
The reason? Its a “waste of time”
The only reason to believe this is because you don’t care about Covid, you certainly don’t care about Long Covid and you’re preparing to leave the chronically ill behind.
https://cen.acs.org/policy/research-funding/NIH-cancels-RECOVER-grants-long/103/web/2025/03
#longcovid #chronicillness #uspoli #disability #covidisnotover #covidisairborne
NIH cancels RECOVER grants for long COVID projects
Termination ‘a waste of the money we’ve spent already’Rowan Walrath (American Chemical Society)
#LongCovid #CovidIsNotOver #COVID #COVID19
Wundert ja keinen das die kleinen nix lernen wenn sie inkl. der Lehrer ständig krank sind.
"Nearly one in ten unsure if they have Long Covid. Almost 5% have the condition and socially disadvantaged groups are most affected"
https://www.eurekalert.org/news-releases/1076866
Free paper:
https://onlinelibrary.wiley.com/doi/10.1111/hex.70202
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19
Nearly one in ten unsure if they have Long Covid
Almost one in ten people (9.1%) in England think they could have Long Covid but aren’t sure, according to a new analysis of NHS England survey data by the University of Southampton. Researchers also found that 4.EurekAlert!
- Dr David Joffe: an overview of biological basis of Long COVID
- Dr David Tuller: on basis of psycho-behavioural therapy focusing on the PACE trial & a major #LongCOVID trial"
https://youtu.be/V9f_kjlz6Ho
From latest Science for ME update
@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Long COVID could be costing U.S. $2.0-$6.5 billion annually
https://www.eurekalert.org/news-releases/1077514
Paper (not open access):
https://academic.oup.com/jid/advance-article-abstract/doi/10.1093/infdis/jiaf030/7972782
Comment: I think I have seen higher estimates. Still huge numbers
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19
Long COVID could be costing U.S. $2.0-$6.5 billion annually
The current number of long COVID-19 cases may already be costing the U.S. $2.01-6.56 billion dollars per year, according to a study recently published in the Journal of Infectious Diseases.EurekAlert!
“For people with complex chronic diseases such as long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and dysautonomia, a clinician’s inadvertently hurtful language can compound suffering and derail effective communication.”
#Dysautonomia #PwME #mecfs #longcovid
@mecfs @longcovid @dysautonomia
#LongCOVID
Source: https://archive.md/7Fos8
Luckily people are generously devoting time to roundups like these:
https://longcovidweekly.substack.com/p/long-covid-weekly-132-a-new-name
https://covidbc.webfoot.com/2025/03/15/2025-03-15-general/
#AirborneAware #CovidCompetent #SARSCoV2 #CovidIsNotOver #COVID #COVID19 #publicHealth #pandemic #LongCOVID
I need a weekly cleaner who will actually turn up. I need a plasterer without the ringing round trying to get quotes. I need a decorator without the searching and trying to get recommendations. I need someone I can call to change lightbulbs I can't safely reach and hook the curtain back on its rings.
I'd happily pay the going rate for the work if it got rid of the headaches.
#Disability #LongCovid #BenefitCuts
https://www.jmir.org/2025/1/e59217/
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots
Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative
The benefits and challenges of electronic health records (EHRs) as data sources for clinical and epidemiologic research have been well described.Journal of Medical Internet Research
Photo is from #MEAction protest at White House, Sept. 2022, right after Biden said the pandemic was over.
Thanks @justyourluck for posting this.
#LongCovid #MEcfs #journalism
https://www.rollingstone.com/culture/culture-features/long-covid-five-years-1235296375/
Long Covid: Five Years Later, Still Little Progress
People with Long Covid are still sick from a pandemic the rest of the world would rather forget.Elizabeth Yuko (Rolling Stone)
I'm scared shitless about getting COVID again. I'm one of the very few people I know who still masks regularly. #LongCovidAwarenessDay #LongCovid #Covid #MaskUp
This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. #LongCovidAwarenessDay #LongCovid #PostExertionalMalaise #ChronicIllness
Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. #LongCovidAwarenessDay #LongCovid #ChronicIllness
We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures.
Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection.
This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid.
It’s time we start processing the trauma of the pandemic and stop living in denial.
We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.
Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place.
Wear a mask. Stay home when sick. Clean and ventilate the air.
When we all agree to care about the air we share, we can begin to bring about real change.
https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid
#longcovid #longcovidawarenessday #covidisairborne #covidisnotover #sarscov2 #chronicillness #wearamask
I Don't Know Anyone With Long Covid
Yes. You do. This Long Covid Awareness Day I want to talk about the reasons why many people don't realize they have Long Covid, as well as why others choose to hide their diagnosis.Broadwaybabyto (The Disabled Ginger)
Long-COVID from the perspective of neurologists at the outpatient clinic: A cross-sectional field study
https://www.tandfonline.com/doi/full/10.1080/01616412.2025.2472824
From the latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs
Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID
Background Patients with Long COVID (LC) often experience neuropsychiatric symptoms such as depression, anxiety, and chronic fatigue syndrome (CFS), collectively referred to as the physio-affective phenome of LC.journals.plos.org
In German with English abstract:
https://www.zefq-journal.com/article/S1865-9217(25)00046-7/fulltext
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs_de
If you’re a healthcare worker, mask up.
Show us you take your oath to “do no harm” seriously
https://healthydebate.ca/2025/03/topic/wear-mask-plea-health-care-workers/
#covidisairborne #covidisnotover #longcovid #pandemic #publichealth #wearamask #n95 #measles #h5n1 #keepmasksinhealthcare #chronicillness #disability
‘We might die because you won’t wear a mask’: A plea to health-care workers - Healthy Debate
Let’s start protecting people in health-care settings as that’s where people should have the best understanding of a viral threat.Maddi Dellplain (Healthy Debate)